data

  1. A

    Monitoring oxigen saturation and pulse

    I have a pulse oximeter but it does not record the readings. I have seen pulse oximeters at a moderate price that do make a recording and the data can be transferred to the computer or even fed continuously. But what those don't seem to have is some alarm when the oxygen saturation gets too...
  2. G

    DPS Enrollment Halted

    http://www.mda.org/media/press-releases/enrollment-diaphragm-pacing-systems-people-als-halted In September, the Data Safety and Monitoring Board (DSMB), constituted to oversee the Diaphragm Pacing System in Participants with Amyotrophic Lateral Sclerosis (DPS in ALS) study, being conducted in...
  3. Inventor

    Wiki on nutritional supplements w/ALS

    In case someone is interested, I started a Wiki project in order to collect the scattered information about potentially interesting supplements in one place. No attempt is made to evaluate their actual usefulness in ALS, but rather present "hard" scientific data on their action on specific...
  4. S

    I thought I had ALS for two years

    After experiencing slurred speech, excess saliva, jaw tension and swallowing problems for several months I went to a neurologist who prescribed Mestinon for Myasthenias Gravas. It didn't work so she ordered blood work, did a rudimentary EMG, ruled it bulbar onset ALS and referred me to Johns...
    • Sunvista
    • Thread
    • age als atrophy bulbar bulbar onset clinic data diagnose emg grant life mestinon mri muscle neurologist neurology onset progression riluzole saliva slurred speech speech support swallowing symptoms work
    • Replies: 8
    • Forum: Could this be ALS?
  5. Atsugi

    One perspective on handling CALS stress

    We CALS are stressed by conflicting expectations in our dual roles of spouse and caretaker. Perhaps some things would be easier emotionally if we were all professional medics, and we could see our PALS objectively as patients. We must keep our spirits up, even if our PALS are emotionally...
    • Atsugi
    • Thread
    • age cals caregiving data death kids life planning progression rapid progression stress
    • Replies: 34
    • Forum: Current caregivers
  6. F

    ALS patient Commonalities collection

    I was diagnosed with ALS over two years ago. I am still standing and doing most things on my own. The Department of Veterans Affairs Canada recognizes ALS as service associated, and they have been very helpful and financially supportive. The 90% of us that have the sporadic kind of this disease...
    • FRUSTRATED
    • Thread
    • als canada cost data diagnosed helpful information medical money neurologist questions research sporadic usa veterans viruses work
    • Replies: 7
    • Forum: General discussion about ALS/MND
  7. D

    Progression faster in older pals?

    Thought I posted this last night but I can't find it. Wondering if anyone has seen any data on pALS that were older when DX'd have faster progression? I seem to see that in my pALS and some of his older friends. Don't think he'll make two years. Sherry
  8. K

    Does anyone think GM604 actually works ?

    Hi Does anyone think GM604 actually works ? I've had a look at the publicly available data and Genervon's website and it looks pretty flaky to me. Also I'm not sure a social media campaign can substitute for clinical data. Then again, I'm no clinician. I'm asking because I have discovered that...
  9. B

    New Investigation of ALS

    As a therapist and student specialized in clinical psychosomatics, I decided to write my thesis about ALS. We are looking at ALS from a completely new perspective: if there is a connection between one's symptoms and certain events in the life of a patient. To be able to collect sufficient data...
  10. krnNdug

    Promising news from Brainstorm

    I know people already know this and they are releasing the study results this week. Dandy posted this in Facebook. It is really exciting news. http://www.brainstorm-cell.com/images/files/investors/AANposterFinal.pdf  The study met its primary objective in demonstrating that a single...
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