equipment

  1. notgivnup

    So Tired!

    Ok, I am here to blow some steam off. Don’t usually do this much but I am sooo TIRED of all the hoops I am having to go thru! And keep getting told go back redo that hoop or that one and the ONE..on and on and on it goes. Why is it so hard to get the equipment I need? You would think I was...
    • notgivnup
    • Thread
    • back chair denial equipment frustrated headaches heart life power power chair problem wheelchair
    • Replies: 52
    • Forum: Rants and raves
  2. G

    Planes, Trains, Motels and other travel questions

    There is going to be a huge surprise birthday party for one of my husband's brother in laws the later part of Oct. It is in Chicago where my husband grew up. All the family will be there, and we really want to go too. The problem is that live in the Houston area. His sisters and brother that...
    • grandmommyk
    • Thread
    • accessible van battery brother driving equipment family info lift medical medical equipment power power wheelchair problem problems questions sleep travel van wheelchair wheelchair accessible van
    • Replies: 20
    • Forum: General discussion about ALS/MND
  3. D

    Selling Equipment

    My husband passed away one week ago and we have numerous items in our possession that we are needing to sell. What typically does anyone do with a very expensive power wheelchair and a standing machine? I'm told by the insurance that these are paid for, but is there some outlet to sell these...
  4. Brother

    Tips on Communicating?

    Hi, Our situation has taken a sudden turn for the worse. I last spoke to Marsha 4 days ago via Skype without problems. Yesterday our sister turned on Skype for me, and I watched as Marsha's communication capability was limited to sporadic moans. I was able to make out a only few words over 30...
    • Brother
    • Thread
    • communication equipment frustrated ideas problems sporadic
    • Replies: 11
    • Forum: Current caregivers
  5. K

    Have a Neurodegenerative disease...now which one is it?

    I was told this last week from the dr. Said I definately had a neurodegenerative disease but didn't know which one it was just yet. It hit me today for some reason...I couldn't tell you why..There wasn't an instance where I couldn't do something...work was realtively horrible as it usually...
  6. M

    Our Story

    Hello Everyone, I have been reading and learning for several months now....I feel like I know so many of you already....My husband Mark was diagnosed with ALS 3.22.11. His symptons started in June 2009 with little things like having trouble with buttons on his shirts....it is funny how we just...
    • Mark's Girl
    • Thread
    • afo als anger biopsy bipap clinic diagnosed diagnosis early eating emg equipment fell food immediately ivig muscle muscle biopsy night peg physical therapy problems reading sad story support swallowing testing tests therapy treatment trouble swallowing voice walker work wrong
    • Replies: 16
    • Forum: Current caregivers
  7. G

    New member

    I am new to the site but could really use some support. My mom was diagnosed with ALS 10/2010. Mostly her voice is affected right now, and she is losing weight. She is so strong and brave and I feel like I am going to fall apart. I try not to let her see, but inside I am a wreck, just...
    • Glorious
    • Thread
    • als diagnosed equipment feeding feeding tube new member support voice
    • Replies: 10
    • Forum: Current caregivers
  8. B

    Florida Assitive Tech Loaner Org

    Florida Alliance for Assistive Services and Technology In researching something for my husband, I found this organization that loans AT equipment and helps with housing, etc... for those with disabilities in FLA. Thought you Floridians might be interested, if you were unaware of this program.
  9. S

    ALS equipment used for torture?

    Hello, I am new and somewhat young, but I believe this is the place to ask Is it possible to insert neuro related tools under the skin without the knowhow of the victim? Is it possible to use such tools to -block thinking -feel pain all over the body -make one nauseous -make one twitch...
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