eye

  1. L

    Sensory Overload

    Can any PALS explain to me what the sensory overload feels like? My sister only blink yes, no and maybe now. She cannot use her computer any longer as her one hand she had use of is no longer working. The senses she has, she had previously explained are hyper sensitive. So in a room full of...
  2. M

    So worried

    Hi all, I've been having some issues and I'm terrified.. It started about 3 mos ago, noticed twitching in my eye then in my chest, about a month ago I noticed that my right foot and two fingers on my right hand felt "off" my foot felt heavy.. Then twitching started all over my body constantly...
    • Mhinz
    • Thread
    • eye fingers foot pain scared tests thumb twitching worried
    • Replies: 25
    • Forum: Could this be ALS?
  3. D

    What is latest in eye gaze technology?

    Left arm is nearly useless and right arm weakening. Need to put something in place for communication. I understand APPLE has something in place with their latest IOS devices and associated cameras. Has anyone tried these? What do you and/or your PALS have experience with? Recommendations and...
  4. KarenNWendyn

    Alexa for the technologically challenged

    I am not a techy person, but I do enjoy using my iPad. My hand function is declining. My speech is slightly slurred and nasally, but still understandable. A friend of mine gave me an Amazon “Fire HD 8 with Alexa”, 16gb, for Christmas. I’m embarrassed to say it’s still sitting on my shelf...
  5. chally

    Dry eye

    Does anyone have this issue? The perfect storm of atropine (mucus) Benadryl (sleep) our heating system, learning how to stay hydrated with feeding tube plus slight air leak of my trilogy mask going right to my eyes. Another sh*t storm side adventure to the nightmare. I use lots of eye drops...
  6. KimT

    NEW APP for PALS

    There is a new free APP for iPhones and iPads called "I have voice." The developer lost someone with ALS and decided he wanted to do this. He asked for feedback on the features. It uses eye gaze technology so you need a newer iPhone or iPad. I've not yet downloaded it but will do tonight...
  7. Nikki J

    Making things easier Part 5

    Part 3 is here with links to previous https://www.alsforums.com/forum/other/40721-making-things-easier-part-3-a.html Part 4 is here https://www.alsforums.com/forum/other/42231-making-things-easier-part-4-a.html I like to revisit this topic periodically for several reasons. I do think this is...
  8. M

    25 years old - BFS has become something more - please help

    Hello all and thank you in advance. My name is Mike. I'm 25 years old, turning 26 next month. Surprisingly, in the face of what I wholeheartedly believe is an onset of ALS, I'm doing an okay job of trying to stay calm, but still very worried. I've always had an odd anatomy. God gave me a bit...
    • mikep123
    • Thread
    • als back bfs brain breathing bulbar burning early eye family fasciculations fibromyalgia fingers hypochondria mri muscle onset please help problem shoulder stupid swelling tongue twitches worried
    • Replies: 9
    • Forum: Could this be ALS?
  9. R

    Tobii Dynavox I-15+, Eye Gazer / Computer / Speech generator for sale/LOWERED PRICE

    ABOUT: I am selling a speech generating device with eye tracker used by my father. Bought Q4 2016, it was used for 2 months, it is mint condition, good as new with very practical stand and wireless keyboard included. Price negotiable, I can send it worldwide. PRICE: 3.500 $ CONTACT: You...
    • razgorsek
    • Thread
    • aac communication computer access design dynavox eye father for sale keyboard power sale speech support tobii tobii dynavox tobii dynavox i-15 tobii dynavox i-15+ toby tracker voice worldwide
    • Replies: 0
    • Forum: Used ALS equipment for sale
  10. B

    Still concerned, but should I be?

    33 year old male. Obese. Office job. I have always had some health anxiety, let's start there. My main anxiety throughout my adult life has been colon cancer, which comes from my symptoms of IBS and GERD. Back in April I had a gastro event, and it ramped up my anxiety. Afterwards I started...
    • BigBuckeye
    • Thread
    • anxiety arm atrophy concerned cramping cramps early emg eye foot foot drop health hip life muscle neurologist pain shoulder symptoms tests thenar thumb twitches worried
    • Replies: 2
    • Forum: Could this be ALS?
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