eyes

  1. tripete

    A new short story

    Raoljost - (A Guiding Light) Chapter 1 I wasn't able to run fast enough. My legs and arms were going as fast as I could force them to move and they burned with effort. My breathing was labored, but under control. Sweat poured from my brow and burned my eyes. I could hear the hounds of hell...
    • tripete
    • Thread
    • ability age angry breathing crying dad death desperation exercise eyes fatigue fell free grief lead lift nose pain power problem sleep story stroke taste wanted wes wrong
    • Replies: 3
    • Forum: Off topic everything
  2. F

    My wife died of ALS last Monday, Nov 27,2017

    This is the last time that I will post to this site. I was a care giver for my wife for 2 years....I was in denial about her ALS and never believed it. She had horrible pain before she passed...so anyone who thinks that ALS isn't painful is wrong. Some people with this horrible disease do have...
    • finiteguy
    • Thread
    • age als back breathing cell denial emg eyes mnd morphine mri pain tests wife wrong
    • Replies: 14
    • Forum: In memory of
  3. A

    Muscle burning and Tremors for two years before sudden onset of ALS-like symptoms

    Backstory: I am a 20 year old male, with a sudden onset of ALS symptoms, after two years of ALS-unrelated symptoms. I am concerned about juvenile ALS. In June of 2015, I began feeling tightness in my calf and began tripping on carpets. I began experiencing muscle burning when I exercised, and...
    • ariansherian
    • Thread
    • als als symptoms burning emg eyes family family history food foot mri muscle muscle burning myasthenia gravis onset scared swallowing symptom symptoms tests tongue twitching weakness
    • Replies: 20
    • Forum: Could this be ALS?
  4. B

    Glaucoma

    Strangely, I developed low-tension glaucoma in one of my eyes back in 2014. Subsequently, I was diagnosed with ALS on Sept. 1 of this year. Is there some speculation or fact that low tension (low pressure) glaucoma is a early indicator of ALS?
  5. B

    Please help does my father have ALS

    I was wondering if someone knowledgeable would be able to help me with some concerns regarding my fathers condition. He has been tested for over a year now and we still don’t have a final diagnosis but doctor seems to be leaning towards ALS. My father was diagnosed with Ocular melanoma 13 years...
    • Bobby888
    • Thread
    • als back breathing communication cpap cramps diagnosed diagnosis diet emg eye eyes father myasthenia gravis night please help slurred speech speech surgery swallowing symptoms tests tongue trouble swallowing twitching voice
    • Replies: 8
    • Forum: Could this be ALS?
  6. G

    Just some questions

    Hi everybody I was diagnosed with motor neuron disease about ten years ago, and since, I’ve been told I don’t have motor neuron disease, and I’ve also been told that I may have a neuropathy, or some form of limb girdle muscular dystrophy. I’ll try to make this pithy, but it’s a long story, if...
    • Glenn1970
    • Thread
    • biopsy breathing bulbar diagnosed diagnosis enzymes eyes foot info motor neuron disease muscle muscle biopsy muscles problems questions story tests tremor
    • Replies: 3
    • Forum: Could this be ALS?
  7. K

    Need Suggestion - Question on ALS

    Hi All, Thank you all for the support . My symptoms started back in 2006 with weakness in the right leg. after 11 years , now I have slight atrophy on one side of the body. I can walk , run and do daily activities. Till now it has not affected me for any activities. But recently I am noticing...
    • krisamba
    • Thread
    • als anxiety atrophy back do i have als emg eyes fasciculations finger pls stress support symptoms weakness
    • Replies: 3
    • Forum: Could this be ALS?
  8. J

    Two months yesterday

    Hi, Just looking for someone to talk to. I feel so depressed the past few days. I mean I've been sad and have my moments but it just feels like it's taken over my body. I keep picturing Jay when his breathing slowed and then his final breath. I go to work every day and then to go to my...
    • jayswife
    • Thread
    • als anxiety back breathing cry crying depressed disability eyes lonely music night sad scared work wrong
    • Replies: 10
    • Forum: Past caregivers
  9. N

    Problems with cough assist

    Hello Everybody, My dad's disease makes him more and more miserable, and he has less and less patience. Now he is upset that he is supposed to use his BiPap and cough assist. Neither works really well for him. With the BiPap, he constantly complains that it leeks into his eyes, and he has eye...
  10. Erika

    More changes as the end gets closer :(

    My mom has been sleeping most of the day since september 15 after a crisis with secretions and saliva where we used the coughing assist. She was able to stay awake for about the time when my brother came to visit about 10 days ago. :) But every day after that, its harder and harder for her to...
    • Erika
    • Thread
    • bed bed sores breathing brother cell coughing eyes fear go away hope movement muscles night pain pneumonia progression sad saliva scared speech thumb tongue venting
    • Replies: 38
    • Forum: Current caregivers
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