family

  1. R

    Thank you in advance

    I want to thank you all in advance, and let you know that I will not dispute your suggestion (and only welcome it) if you don't think ALS is a possibility in my case. I also want to let you know that my thoughts are with each of you that have been diagnosed or have had a family member diagnosed...
  2. Kristina1

    update on me

    I haven't posted in a while so I wanted to update. One of the main reasons I haven't been on here is... I'm writing a book! Or trying to. It has nothing to do with ALS or anything autobiographical. It's a scifi/fantasy romance. I've long been an avid fantasy reader, and always had stories of...
  3. B

    Happy New Year Everyone

    How exciting! 365 blank spaces on a new calendar. *Take a few moments just to sit and look at it. *Enjoy the possibilities. *Anticipate good things that may happen: experiencing the warmth of sunshine; the scent of rain; the sparkle of snow; beauty of spring and summer flower; jokes and...
  4. B

    Happy New Year

    :-P Salutations, greetings and hello! 2019! A new calendar of 365 days! May hope; faith; joy; love; hugs; kisses; birthdays; special moments; sunshine; rain when needed; visits with family and friends; jokes and laughter; quiet meditation; peaceful rest; fun outings; moments in the sun...
  5. P

    Scared and sad...

    First off, thanks to everyone on these forums. I have been visiting a bit as I'm quite convinced my girlfriend of 10 years has developed this terrible disease. A year ago today we were on our snowmobiles in northern Maine... it seems impossible that we are where we are right now. Sharon...
  6. M

    Do I have ALS

    Hello, people!!! I'm so sorry for bothering you all and taking your precious time.. One day(it's became my dream lately..) I want to discover a cure for this awful, terrible disease... I'm a tall(1.85 m), white, 14 year old boy living in Europe. Recently I've noticed muscle twitches mainly in...
  7. K

    I am terrified. Haven't had much internal peace in the last month.

    First, I want to thank everyone that takes time out of their day to help people in this forum. After doing a lot of research and reading on this forum I have decided to post a thread, seeking help. The truth is that in the past few weeks all I can think about is ALS. As time goes on the more...
  8. S

    Update - 12/24/18 - Extreme bulbar worries

    Hello everyone...I hope everyone is having a good Christmas season. I wish I could say the same. It's been almost 6 months since I have been here. Some things have gotten better and some a lot worse/terrifying. I was hoping to never have to come back here but my situation has dictated I do...
  9. E

    Doing chores

    Hello, and Merry Christmas! I am writing to ask you a question about the daily chores. My father has retired about a year ago and has been suffering from PLS for 3 years. Since then, he spends most mornings doing chores: aside from showering himself and getting dressed, he cooks for the family...
  10. T

    Never wanted to do this.

    Hello, first I just want to say thank you for reading this and for those who are affected with “A” y’all are brave souls and I pray for y’all. I didn’t wanna post on here because I felt like i didn’t need to but I feel like I’m losing my life. I’ve recently lost my job, almost my relationship...
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