I'm writing this for the benefit of all CALS and PALS.
I've been a CPA for nearly 40 years. Part of this has involved personal financial planning and teaching personal financial planning at the college and university level.
PLEASE make sure you have a financial plan and your spouse AND...
AB Science announces positive top-line results of final analysis from study AB10015 of masitinib in amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease
Primary analysis is a success and confirms interim analysis
Company to host webcast on masitinib in ALS
AB Science SA...
als
clinical
cure
data
death
disability
drugs
financial
free
lead
medicine
neurologist
paralysis
progression
research
riluzole
symptoms
test
tests
treatment
trial
tyrosine
update
urgent
website
Hello PALS
I have been doing some research into NurOwn as a therapy for ALS. The problem I have is that I'm not a scientist, and the published reports leave me a little confused as to what is actually going on. I was hoping that a few people on this forum may have undergone the trials to date...
Hello---My name is Cathie and I am from Boston. After over a year of tests and doctor appointments I was diagnosed. I now am getting care at the ALS clinic at Mass General Hospital. I am walking with crutches and use a walker at home. I have stairs into my condo building and I am afraid I...
Hello all,
For the last 4 months my brother has been having 6 weekly IVIG treatments to rule out possible MMN, and seemed to be responding - his bicep which had atrophied is growing and he's regained use of a finger that had stopped working.
However in the last few weeks he's developed a new...
advice
als
back
brother
cals
children
clinical
diagnosed
financialfinancial help
finger
info
mmn
mnd
mri
paralysis
stop working
support
symptom
symptoms
test
tests
treatments
wheelchair
young
My dad was diagnosed with ALS just over 3 years ago and those symptoms have been very slowly progressing. He was more recently diagnosed with FTD, and those symptoms are more of what we are seeing and his doctor's feel has been there before the ALS diagnosis was made. As my parents marriage is...
So we only have one company in the area that does home health and hospice. Right now I am getting pt twice a week along with an aid that helps Vicky shower and shave me.
Twice now they have had a rep come by and " advise" us. He is really pushing us to switch to hospice and go on medicaid even...
I do not come out on either side of the suicide or physician-assisted suicide issue, but I do staunchly support the right of PALS to be fully informed about their prognosis and treatment options. Indeed, in every debate concerning physician assisted suicide, all sides agree that the patient...
ability
assisted suicide
cals
choking
dying
end of life
equipment
family
fear
financial
home care
hospice
hours
ice
increase
information
life
pain
risk
sleep
support
treatment
M has progressed significantly in the last year. He has given up walking and currently is using his Zinger (our traveling electric wheelchair) in the house. We have an appointment at Spaulding for him to be fitted for a power chair. I have appreciated the recent threads regarding the PWC...
ability
baclofen
botox
cbd
electric wheelchair
financial
foot
gabapentin
hours
hoyer
night
oil
power
power chair
problem
pwc
running
sad
sleep
speech
surgery
swallowing
transfer
transfers
wheelchair
I almost posted this in the Tips Tricks and Gadgets forum, but decided to stick with this one.
Starting Tuesday, you can enter a contest to win a playtex ventaire bottle and the adapter tip which lets the bottle be used for gravity feeding.
The advantage of this bottle over using the...