helpful

  1. J

    Cognitive changes/Advice

    My PALS, bulbar onset, diagnosed last December has been steadily declining both physically and cognitively. Back in April we enrolled in the LEFFTDS study at the Mayo Clinic because there was a possibility that he had familial ALS due to C9 gene mutation. As part of the study he did have a...
    • Jennanne
    • Thread
    • advice angry back brain bulbar bulbar onset clinic diagnosed familial familial als family frustrated genetic genetic testing heart helpful kids mri neurologist onset questions support testing work worried
    • Replies: 7
    • Forum: General discussion about ALS/MND
  2. C

    Worried for my Husband

    Hi there, I was on here around 2 years back as i was concerned about my husband, just a quick round up of his symptoms, for the past 3 years my husband suffered from Muscle twitching, spasms, tremors, some degree of weakness and feeling tired and issues with his swallowing and speech. We have...
    • Cathy1982
    • Thread
    • als and ftd back brain bulbar cold coughing eating emg food helpful husband mri muscle muscle twitching muscles scared spasms speech swallowing symptoms test tongue twitching weakness worried
    • Replies: 4
    • Forum: Could this be ALS?
  3. H

    Concerning symptoms

    Hi, all. For the past 1.5 months I've been experiencing symptoms, which have been the source of a great deal of anxiety to me, a 20 year old male. I'll outline them in a timeline below: Mid-July to early August: - Noticed persistent, strange facial sensation in right side near facial nerve...
    • Hizgal
    • Thread
    • als anxiety arm back brain crying early eye fasciculations fatigue fingers headaches health helpful life mri muscle swallowing swallowing issues symptom symptoms timeline treatment weakness worried wrist
    • Replies: 8
    • Forum: Could this be ALS?
  4. U

    Thanks to moderators

    Thanks to everyone who has worked hard answering on this forum. I have ongoing symptoms and my doctor has referred me to a Neurologist. Main symptoms include, tingling/pins and needles in legs, 2 numb toes (feeling comes and goes) and severe 'twitching' in right thigh (noticeable even through...
  5. Tedstehr

    Edavarone in Canada

    I am creating this thread as a discussion on how to get Edavrone in Canada, and what I have discovered. Here is what I have learned so far. Mistubushi Tanabe Pharma is the creator of the drug. It is ultimately up to them if they want to sell the drug in Canada. If they do, it sounds like...
    • Tedstehr
    • Thread
    • als canada cost drugs health helpful information neurologist problem progression radicava research website
    • Replies: 9
    • Forum: Research and trials
  6. N

    My Father

    Hi All, My father passed away on 8th Aug 2017 from ALS. I am writing this for others who may find our experience helpful. We live in Mumbai, India. My father showed symptoms for ALS since Feb 2016. Initial symptoms included weight loss, weakness, lethargy (especially in the morning) and...
    • niravshah81
    • Thread
    • als bipap breathing diagnose early family father goodbye health helpful hours information mnd morphine night onset oxygen sleep swallowing symptoms tests travel ventilator weakness weight loss work
    • Replies: 9
    • Forum: In memory of
  7. B

    Waiting for EMG

    Hello, I am posting regarding my 62 year old husband, who is a newly-retired law enforcement officer. About five months ago, Dale noticed that he was losing weight without trying. His caloric intake was high. The weight kept falling off and our Primary Care doctor became concerned and...
    • berardmr
    • Thread
    • als? back bed brain clinic cry diagnosis emg falling fear helpful medical neurologist sleep symptoms tests weight loss worry
    • Replies: 32
    • Forum: Could this be ALS?
  8. KimT

    Lift Chairs

    About a year and a half ago I bought a Golden (brand) Cloud (model) lift chair. Because I frequently eat watching TV, I got the faux leather. It is very soft and the most comfortable chair I've ever had. When I sprained my ankle, I slept in it for a couple of nights. I highly recommend a...
  9. P

    Just been diagnosed by two ALS specialists

    I have just been diagnosed by two ALS specialists at OHSU and Providence. Am academic shrink not sure if that is helpful. Don't have any upper motor neuron signs (bilateral babinski, bilateral hoffman and jaw jerk WNL) and have normal reflexes except for brisk knee reflex which I have always...
  10. T

    Please help, I'm going nuts

    This is my first time ever doing anything like this but you guys seem very helpful and I was hoping you'd give me some of your opinions. About a 8 days ago I started having slight tremors in my hands and legs but that went away as the anxiety got worse strangely, anyway of course I think I have...
    • Tavoh
    • Thread
    • als als fear anxiety arm clinical cold driving family fasciculations foot go away helpful hyperreflexia life muscle muscle twitches muscles please help problem questions reading stiffness symptoms twitches wanted weakness worried
    • Replies: 8
    • Forum: Could this be ALS?
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