helpful

  1. B

    Update on my visit to my sister and a new question

    I posted over a month ago and got very helpful advice. I wanted to thank all who replied once again. I spent a wonderful week with my sister. I have to admit there were tears but there was also a lot of laughter. My sister's spirits lifted and we went out for a walk every day to her favorite...
  2. Y

    Hand Atrophy

    Have a nice day, I wrote it here before. The old writings are: https://www.alsforums.com/forum/do-i-have-als-als/40639-als-symptom.html https://www.alsforums.com/forum/do-i-have-als-als/41045-problem-hands-feet.html My hand's getting worse. I have reached the neurologist through the...
  3. affected

    New FYI guide

    Written for professionals, really for the CALS this is critical stuff to understand when they are dealing with cognitive impairment or even full blown FTD. I hope CALS find this helpful. I also hope that more tools are developed that can be used with the CALS to help figure out impairment...
  4. J

    Any information would be helpful.

    Good evening everyone. I have a few questions regarding some new symptoms I have been exhibiting. Approximately 3 weeks ago I was hit with a couple of weeks of strange dizzyness. The feeling you get when you turn your head and it takes a few seconds for everything to catch up. As this...
  5. tripete

    Dear Past and Current Caregivers

    I want you to write a book. I would like as many of you as want to contribute 5+ pages about what you have learned about, ALS including tips and tricks, what you have learned about life living with a PALS, and life after your PALS has left. I would put all my energy that I have left into...
  6. S

    Very worried

    Hi all, First of all I would like to say sorry for posting this in here. Just don’t have many people to talk to and would like some helpful information. I am a 21 year old female. My mother was diagnosed with ALS in 2013 she was 52 years old. I was mums primary caregiver. It all started in...
  7. F

    Facts and figures on ALS costs

    Hi I'm running a fundraising event for the ALS Association but I'm having difficulty in finding details of how donations are spent. I know from past projects that number are an extremely persuasive tool. Something like: $10 will pay for... $20 would cover... It could be treatment, it could...
  8. F

    i don't understand something

    hello all, as you can read here https://www.alsforums.com/forum/do-i-have-als-als/40073-mum-diseas-strange-situation.html (a link of my old thread) my mum was diagnosed in Feb 18 with 2nd MND. doctors said that is not possible to see the future but as we see in her clinical history it is...
  9. E

    Here for an opinion

    First, I want to thank all the contributors to this forum especially PALS/CALS. I do recognize that your time is valuable. Yet, you devote so much time to helping others (a large percentage of people that don't have anything that remotely resembles ALS) which is truly remarkable. About 10...
  10. Y

    I don’t have ALS

    I was dealing with some pretty bad health anxiety this past week, of course after watching the VICE news piece on ALS and an HBO movie called “Jenifer.” I’m very sure I don’t have it now because I’ve only been experiencing a feeling of weakness, primarily in the hands, that sometimes is felt in...
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