ideas

  1. L

    bed remote control

    My mom isn't able to push t he Buttons for her hospital bed remote control. She can't sit up or lay her bed down. We help her during the day and have looked at some alarm systems, so that we can help her during the night. But she says she is afraid her saliva will get pooled in her throat and...
  2. T

    slurred speech and minimal alcohol

    Hi ! I will try to make myself the most clear and brief as possible (you can see my other post for more information). In brief: October 2016: tongue bitting and what lookd like fasciculation (still ther today) December MRI...nothing February 2017: Emg with a specialist in ALS. No sign ALS...
  3. S

    Sille's thread: Can we talk symptoms?

    Thank you so much tracyliz, Your detail is very much appreciated. As someone who is just at the start of this journey I'm just trying to get a handle on what the future will look like. I know my progression is still in its infancy and I'm yet to be definitively diagnosed. I've had 2 CTs, 2...
  4. S

    Can we talk symptoms?

    Hello, This is my first time posting and I've only been poking around for a week as it was a week ago that my Neurologist said he thinks I may have PLS. I've only had my symptoms for a year and I know that it can take many more for a definitive diagnosis. With that being said, I'm wondering what...
  5. tripete

    Trouble Swallowing Ideas

    my Dysphagia has gotten extremely bad. water and other plain liquids cause me to choke constantly (saliva swallowing is even a problem). Most food is now pureed. I am looking for alternative beverages that dont require thick it (I am tired of it). I have found that putting 3 large tablespoons...
  6. bkite

    Paraprosdokians

    Have you ever heard of Paraprosdokians? First time I heard about paraprosdokians, I liked them. Paraprosdokians are figures of speech in which the latter part of a sentence or phrase is surprising or unexpected and is frequently humorous. (Winston Churchill loved them). 1. Where there's a...
  7. J

    Scared

    I had an EMG test done in 2016 when I developed foot drop and was tripping and occasionally falling. The neurologist didn’t have any concern at that time. He said I had some arthritis. I saw a neurosurgeon and decided to do surgery for foot drop on my L5 section, discectomy she called it...
  8. B

    Update on my visit to my sister and a new question

    I posted over a month ago and got very helpful advice. I wanted to thank all who replied once again. I spent a wonderful week with my sister. I have to admit there were tears but there was also a lot of laughter. My sister's spirits lifted and we went out for a walk every day to her favorite...
  9. J

    Weird Symptoms.

    First, I want to thank anyone that takes the time to read this post. I have started to develop weird symptoms that I cannot explain and they are causing severe worry. Background information: 24 year old female, decently active, used to play competitive sports. So, the symptoms started roughly 2...
  10. F

    Opinion?

    Hello, I have a question about my condition - I have quite a lot of fasciculations (thighs, calves, shoulders, hands, face, chest, back, little "feelable jolts" time to time on tongue, sometimes even inside of my ear - drum and sometimes I can see flickering in my eyes similar that I see...
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