immune

  1. karla r

    Still working on ALS Clinic

    I am really now unsure where to go from here. Have been trying to keep posts at a minimum, and here is why. Had appointment with my primary doc. He said to keep my follow up with #2 neurologist. If he didn't send me on to the ALS clinic for eval, then go back to the 1st, and see if she can make...
    • karla r
    • Thread
    • als als clinic als clinics autoimmune back biopsy brain clinic clinics diagnosis eyes immune info muscle muscle biopsy neurologist problems tests tongue unsure
    • Replies: 24
    • Forum: General discussion about ALS/MND
  2. Barbie

    5 months in...

    Well, hard to believe it is almost 5 months since my sweet husband died. I still hate ALS just as much. don't really think about it too much though...don't really want to. I hate to look at pictures of him from the last few months of his life. I can't believe that I didn't see (at the time)...
    • Barbie
    • Thread
    • als back children christmas eyes family friend grief heart hope hours immune life love pain reading sad secure video
    • Replies: 24
    • Forum: Past caregivers
  3. S

    Just diagnosed with monomelic amyotrophy

    Does anyone else on this forum have it? I'd appreciate asking you some questions and what not. For anyone who sees this and doesn't know, it's a "benign" motor neuron disease and/or a spinal cord damage condition and/or an immune response that causes 1-2 years of progressively worsening muscle...
    • shadypenguin
    • Thread
    • diagnosed immune monomelic motor neuron disease muscle muscle wasting questions weakness
    • Replies: 1
    • Forum: Off topic everything
  4. N

    Hello everyone!

    Good afternoon everyone, I was diagnosed by ALS specialist at Mayo Clinic here in Jacksonville just after Xmas, I have limb onset ALS. I am 28 years old and have no family history, although my grandma did have dementia unkown if it was FTD or not. Symptoms started around 7-8 months ago or...
    • Nolesac
    • Thread
    • 2nd opinion age als arm clinic dementia diagnosed diagnosis family family history ftd helpful immune ivig mmn onset sad stress weakness work wrist
    • Replies: 47
    • Forum: Newly diagnosed
  5. G

    Treeway

    Interesting. This outfit has 3 ALS treatments in the pipeline. Treeway Pipeline - Treeway One, TW001, is a mod of the recent drug approved in Japan, edaravone. They state it should hit the market in 2017. Treeway’s pipeline is anchored on the role of immunology and inflammation in the disease...
    • GregK
    • Thread
    • age als clinical cure early edaravone fda holiday immune increase preparation progression research risk stress stroke therapy treatments
    • Replies: 3
    • Forum: Research and trials
  6. M

    At NIH, newbie!

    Hi all, My husband John and I are currently laying in a hospital bed at NIH! Our journey started 4 1/2 years ago in the spring/summer of 2011. John grew up on a ranch in West Texas and worked as a geologist in the Oil Fields. He played baseball, football, and wrestled growing up. In 2011 he...
  7. A

    What is a relevant symptom and what is not?

    I am a 59 year old, caucasian woman. I am awaiting an appointment with an ALS specialist. Thinking back, I had weakness in my left arm as early as Jan. 2014. In May 2014, I had an event that included dizziness (felt like I was banking to the right all the time) and, after a week, tingling in...
    • Artwinged
    • Thread
    • als arm atrophy back biopsy brain driving early emg ideas immune lift muscle biopsy muscles neurologist night sleep speech stroke swallowing symptom twitches weakness
    • Replies: 4
    • Forum: Could this be ALS?
  8. ShiftKicker

    Glutamine/glutamate/glutathione- ?

    Hello all- At the risk of sounding like a total ignoramus, can someone help me understand the risks/ benefits of glutathione, glutamine, glutamate? I've searched for each term, but am having a very hard time wrapping my head around just what is good and what is bad. I also had a look at the...
  9. L

    Monomelic amyotrophy

    I have been undiagnosed for 8 yrs. I started having weakness in my left thumb and eventually got atrophy of median nerve. No other symptoms for all these years. About 8 mths ago I started having muscle weakness in the upper part of my arm. They have tested me for auto immune and all other...
    • L3sorensen
    • Thread
    • advice arm atrophy diagnosed diagnosis immune media monomelic muscle muscle weakness symptoms thumb undiagnosed weakness
    • Replies: 14
    • Forum: Newly diagnosed
  10. A

    Symptoms for over 6 months, scared

    Good afternoon everyone, I just want to say that I admire the courage and helpful atmosphere exhibited by the members of this forum. I have been on here on and off since last October when my symptoms started. Just to give a brief history I began having odd sensations in my upper thighs almost...
    • almnz418
    • Thread
    • ability atrophy back cals clinical decline emg fingers health helpful hope ignore immune lift mnd muscles neurologist progression scared shoulder sleep symptoms test twitches twitching wrist wrong
    • Replies: 4
    • Forum: Could this be ALS?
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