information

  1. D

    Sensorimotor polyneuropathy and ALS

    In addition to ALS I was told that I also have Sensorimotor Polyneuropathy, but that I need no treatment for it. Anyone have information on this combo? Evidently the first neurologist I saw in Lafayette, IN, who did a less extensive EMG than the muscular neurologist at Rush in Chicago, added...
  2. KarenNWendyn

    Permobil vs Quantum power wheelchairs

    I posted recently with questions regarding the Permobil F3 (I’m currently borrowing one from my loaner closet and like it so far). That previous thread is here: https://www.alsforums.com/forum/general-discussion-about-als-mnd/42619-question-you-wheelchair-geeks.html I did receive a gift of a...
  3. S

    Not sure it’s ALS

    Hello, for about 3 months I have been having very odd symptoms. Twitching all over, face spasms when squinting or smiling, lost a lot of stamina , 3+ brisk reflexes and now this past week I’ve had arm weakness. I have seen a neurologist and he said everything is probably normal but he’ll...
    • Samtony981
    • Thread
    • advice als arm arm weakness clinical emg flexing flu information lead neurologist spasms symptoms twitching weakness worried
    • Replies: 9
    • Forum: Could this be ALS?
  4. D

    ALS fears

    Hi guys, I’m really new to this thread and have read all the information before posting this. I’m really scared at the moment. A few days ago I noticed a sudden weakness in my left leg. This wasn’t gradual and as I say, very sudden. I can still walk properly, walk on my tip toes and I don’t...
    • Dannybs09
    • Thread
    • #terrified aalsworries ache als als fear als? ankle arm back balance bed clinical fear feeling weak foot foot drop information medical muscles neurologist night pain problem problems questions reflex scared stiffness symptoms tests trip twitch twitches twitching wanted weakness worried worries
    • Replies: 19
    • Forum: Could this be ALS?
  5. 1

    Please please help with my symptoms!!

    Hi all, I am so very hopeful that somebody can either put my mind at rest or give me the strength I need to really push my doctor for some more information. I am a 36 year old female. For the past few weeks I have noticed that I am having muscle twitching or "fasciculations' all over by body...
    • 1981driver
    • Thread
    • arm atrophy brain cold cramping crying early fasciculations feeling weak female information mri muscle muscle twitching muscles neurologist onset please help reflex shoulder symptoms test twitching weakness worry
    • Replies: 6
    • Forum: Could this be ALS?
  6. KimT

    Physical Therapy

    I had my first appointment with the physical therapist today. I was with him for an hour and a half and he did a thorough evaluation. He has worked with MS patients (one was there at the time I signed in) and he actually requested more information about ALS. He understood the disease but...
    • KimT
    • Thread
    • als ankle balance cannabis free ice information medical mri neurologist physical therapy running testing therapy
    • Replies: 12
    • Forum: General discussion about ALS/MND
  7. D

    Trilogy with Passy-Muir valve?

    I was recently switched from an LTV950 to a Trilogy. I have always been able to speak easily on the LTV with my cuff deflated. An additional 5 of PEEP from an inline valve allowed more than one or two words per breath. With the Trilogy, I am back to one or two words and it a horrible step down...
  8. Jhettinger

    VETERAN Discussion Rating increase R1 to R2

    Looking for specific information on going from R1 to R2 Getting R1 was not hard, just told PVA rep and done R2 seems an struggle. Sent VA Dr Support Form VA FORM 21-2680 Examination for Regular Aid and Attendance, PVA requested letter 2. Got that, put in packet. VA sends me one inch thick...
  9. Q

    I received this report summary for the EMG/ physical examination from the neurologist

    I want to start off by expressing my appreciation for the help I am receiving. Thank-you for taking the time out of your day to selflessly help me here. Here is the physical examination, EMG findings, and future plan from the neurologist/doctor. Location EMG/ NCS performed: Only on the right...
    • quickly543
    • Thread
    • atrophy emg family information muscles neurologist shoulder twitching weakness
    • Replies: 3
    • Forum: Could this be ALS?
  10. jethro

    Difference between diagnoses

    Friend, 61 yo, thought that she had als. after examination where everything was ok, she is suffering for a 4 years and finally she got diagnose: code g54.5 - neuralgic amiotrophy. she had all symptoms identical like me, but i'm "right side", she is left side". she doesn't use internet, so i am...
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