lead

  1. P

    Advice very much appreciated

    My name is Patrick and I'm a 25 year old male in the UK. I feel quite certain that I have ALS and I was wondering if anyone had any kind advice to offer. Apologies for the long post but I feel like the onset of symptoms has been quite odd and perhaps worth sharing. The story starts six weeks...
    • PCM25
    • Thread
    • advice als arm atrophy back breathing burning exercise fasciculations hope lead money neurologist night onset pain pressure progression shoulder speech story symptoms tests twitches wanted
    • Replies: 4
    • Forum: Could this be ALS?
  2. T

    Atomic Meltdown

    I do not have to explain to any of you how much living with a spouse with ALS SUCKS! I am so very tired! I am sick of putting on this brave face! I am pretty fed up with my husband and his demands! I DO NOT want to be responsible for every little detail of our lives. Paying bills, lawn work...
  3. M

    Question and possible help for others

    Good afternoon, I have a specific question which I'm hoping you can help me with. I've read many posts, etc. and sometimes they are "in line" and then sometimes you get a variation from what the mods and senior members post here so hopefully this will help me. First, I do understand that many...
    • MANinCT
    • Thread
    • advice als arm back clinic early emg fingers go away kids lead mistake peg problem questions story symptom symptoms test testing tests twitch weakness worried wrong
    • Replies: 12
    • Forum: Could this be ALS?
  4. T

    Familial ALS

    Thank you for adding me/us to the forum. In brief, here is our story: My husband lost his mother to ALS when she was 59 years old. She had one aunt, one uncle, and two first cousins who also passed from ALS. There were a couple other family members who may or may not have had early signs, but...
    • Tkhalaska
    • Thread
    • ability advice als denial diagnosis drug trials early familial familial als family feeding feeding tube genetic genetic testing lead research respiratory story swallow symptoms testing trach ventilator weakness wheelchair
    • Replies: 17
    • Forum: Familial ALS (FALS)
  5. R

    Think I have ALS and have some questions

    So first off, I’m a male of 21yo. I’ve been healthy my whole life up until 2017, I was trying to lose weight from 190 and went down to 115 as of now, I was trying to lose weight but now I can’t seem to keep weight on. So about a month ago I started to develop bad back pain in my lower back, at...
    • Robert21
    • Thread
    • advice als back brain breathing burning cry eyes insurance lead mri neurologist night pain relative sad scared shaking shoulder symptoms tests twitches urgent vision weakness worried wrong
    • Replies: 7
    • Forum: Could this be ALS?
  6. D

    Treatment with cannabis oil, please share your experience

    Dear Sir or Madam. My daddy 57 years old. In November 2017, my loved daddy was diagnosed with amyotrophic lateral sclerosis (ALS disease or motor neuron disease). Bulbar shape in the initial stage. Symptoms: the blurred (smeared) speech, twitching of the muscles of the arms and shoulder girdle...
    • Daria
    • Thread
    • age als brain bulbar cannabis cannabis oil cannabis treatment cbd diagnosed drugs fasciculation lead marijuana motor neuron disease muscles oil problems shoulder speech statistics symptoms thc tongue treatment twitches twitching
    • Replies: 13
    • Forum: General discussion about ALS/MND
  7. I

    Anterior Horn Cell Disorder

    Just received a written report of the EMG I had taken in late January. At that visit I was told that I was diagnosed with PBP. The report, however, says that although I was referred for a question of motor neuron disease, the EMG/NCS findings fall far short of electrical criteria for MND...
  8. jethro

    Entering 4th year of ALS - my status, pleace advice

    in a 750000 citizens capital of my country, i found just one guy (early twenties) who has ALS. he was in china, hardly speaking and moving etc so i dont have base to compare with him. there are at least more than 15 people having ALS in my town, but for sure they dont use internet. as i said...
    • jethro
    • Thread
    • advice als china cramps cure design early fasciculations fda foot foot drop free fvc lead power questions rilutek stress tests therapy tongue tongue fasciculations trial wheelchair wrong
    • Replies: 3
    • Forum: General discussion about ALS/MND
  9. P

    Freaking out but probably just bfs

    Alright I've had bfs symptoms about 4 and a half months ago that started with buzzing on my face and then lead to my ears and chin and then the next day I started experiencing twitching and buzzing body wide. I eventually got over it and figured it was nothing but then about a week ago the...
  10. KarenNWendyn

    How many dogs does it take to change a lightbulb?

    Here’s an old favorite, well-worth repeating. How many dogs does it take to change a lightbulb? Golden retriever: the sun is shining, the day is young, we’ve got our whole lives ahead of us, and you’re inside worrying about a stupid lightbulb? Border collie: just one, and then I’ll...
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