lead

  1. M

    Very concerned

    hi everyone, I'm a 24 year old male from Australia. I have recently been having some symptoms that have lead me on to this forum. It all started 2 weeks ago I was driving in my car and I felt like I was going to black out. That night I started searching up what could be wrong with me, i then...
  2. S

    Tulsa Walk to Defeat ALS

    Our team "Hewitt Strong" participated in the Tulsa Walk to Defeat ALS on October 15th. It was amazing! My PALS is such a special man. Appx 75 friends and family including his 88 year old dad showed up to walk and support him. It was such a special day! A very nice police officer allowed...
  3. M

    RCH4 Drug stopped by Dr. Bedlack

    Moderator's note: This topic was explored some months ago in this thread. dr bedlack designated eric valor as the lead investigator for the rch4 review on behalf of alsuntangled (alsu). a review for alsu should be conducted in the following manner, according to the alsu website (2 minutes into...
  4. K

    I'm fading away...Please help..

    Hey forum.. 38 year old male here from Canada.. I have been struggling with some not so nice symptoms since February 15, 2016. I will try my best not do give you an extremely long story, as I have noticed when people reach out for help it sometimes can lead to writing a novel, and I don't want...
  5. C

    Sick and frustrated /pending diagnoses

    You are an amazing group. Your posts have helped me through a very rough three months of symptoms and no diagnosis. After ending up in a ball in my backyard weeping 30 minutes ago, it seemed a good enough time for my first post. Perhaps given the length of my first post, I will be banned from...
  6. D

    Finding a neurologist who knows...

    Hi everyone, I am still stuck in a diagnostic disaster. I am an American living in northern Spain, and Spain has both private health care and public (free) health care. I started my journey in the private system because it goes faster and it all started with just an ankle problem. In June this...
  7. H

    Repeated falls

    My sister just had her 14th severe fall this weekend, and each time she falls with no warning and lands flat on her face. She has sustained bruises and lacerations previously, but this time she fell hard enough on her temple to make her woozy and disoriented (but not unconscious), so they took...
  8. H

    Update

    I made a point to stay off of this site since my last post until my follow up neuro exam yesterday. Last neuro exam was January 2016. My neurologist did the clinical exam doing various strength tests, sensory tests, cognitive tests, and then of course reflexes. At the end of everything, she said...
  9. A

    Worsening symptoms

    Hi im sorry to do this but im seriously getting concerned over some worsening symptoms. I had a right ring and pinky finger discomfort for some time twitching, stiffness, tremors. Until just a few days ago i had a noticeable dent between my pinky and ring finger that i had never seen before...
  10. S

    Mixed Signals

    I am getting some mixed signals from Tom. He has never been one to express his feelings so he wouldn't necessarily say what he feels. We have in the past discussed that when he feels like it is all too much and he is ready to go, he can stop with the feeding tube and allow nature to take it's...
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