mnd/als

  1. J

    Sleepless Night With Worry

    Hi All I have read the sticky as well as past posts by others, trying to avoid having to post. I still have niggling thoughts in the back of my mind. I am 28 Years old For the last 2 weeks i have been having constant twitches mainly in my right leg. They do flit around all over my body on...
  2. I

    Please help explain

    Hi everyone. I am You, 46 yo, female. English is my second language, so it's not that good. I received my discharged summary from my neurologist 3 days ago. I need your explanation please.....it says...." The combination of findings involving the internal capsules, corticospinal tracts and...
  3. T

    Is it MND/ALS? Please Help

    Hi, I am from India, and writing this to explain my Father's(51 year Old) symptoms. He started having some problems in his right leg 4 years ago which slowly worsened and finally 3 years ago extensive tests including MRI's, Auto Immune, Blood reports, EMG's and NCG. Everything came out normal...
  4. D

    Neuro thought MND, other one doesn't.. Some opinions please

    Hi people, I posted a few weeks ago because I had seen a neuro who said that they were worried I could have MND, which got me really upset. I have seen another neuro yesterday who said he does not think MND but benign twitching disorder and he isn't sure what the previous neuro was on about...
  5. dkcarl62

    Stuffy nose

    Several times a week, usually in the early evening, my nose will stuff up. Like wads of cotton got stuffed up there. Not being able to breath thru my nose drives me crazy! I've tried everything, saline spray, Flonase, Vicks, antihistamine pills (Zyrtec), decongestant pills (Sudafed) - the...
  6. R

    I have ALS

    Hi, I am Ram from India,have been diagnosed with ALS. Presently i have tongue & muscle fasciculations on arms,legs,shoulders.It has been one year with als. I am looking forward to hear tips to overcome this disease.
  7. A

    Little blessings

    Wow! Today I managed to pick a box of figs, and water some seedlings that have just emerged. Feels like a wonderful day! Oh, and I walked one of our dogs. Today seems so much more organised. Don't know why though. Some days ,I feel as if I am going around in such an empty space. I often feel...
  8. Dave Kerwood

    My wife has been diagnosed with MND-ALS + FTD - Part 3

    Thought I would come back and update... Things have not gone too well. Julie is now at 46.3lbs. The good news is that she is having her PEG fitted on Friday. So much has happened over the past couple of months with her FTD + MND/ALS. All I can say is that the MND/ALS is loosing. FTD has taken...
  9. D

    Is this typical ALS development?

    Hello. I am a 35 year old male. For the last six months I have been having many symptoms that makes me seriously scared of MND/ALS. I have been healthy prior to this. So now, the thriller is on, and I have came to the point that I cant resist to share my concerns here… I have found comfort in...
  10. J

    Newly diagnosed and terrified

    Hi everyone, I am shaking whilst i type i'm afraid so apologies for my spelling and grammar in advance :cry: I received an initial diagnosis yesterday that i have MND and am being referred by by Neuro to a specialist with MND/ALS experience. I am male and 46 years old, my mother died of Bulbar...
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