mnd/als

  1. P

    any experts out there? My dad's been diagnosed with ALS

    Hello to all, this is a fantastic way to be in touch with people like us out there, I feel soooooooooooooo alone right now. My dad was diagnosed with MND/ALS 2 weeks ago, the only tests he had were EMG and blood tests. His respiratory muscles are failing and he has gone into hospital today for...
    • pettal
    • Thread
    • advice als autoimmune breathing chair dad diagnosed emg mnd mnd/als muscles respiratory symptoms testing tests
    • Replies: 2
    • Forum: Could this be ALS?
  2. M

    Attitudes towards end of life issues among people with MND

    Hello, I am a junior doctor in London with an interest in neurology. In collaboration with several consultant neurologists at Barts and The London Trust, I have written a survey about attitudes towards end of life issues among people with MND/ALS. It covers some sensitive issues, such as...
  3. A

    alex scared . . Emg update

    hi all . . Sorry for use delay but my internet access has been restrictd . Sorry again . . Anyway my emg result . my neuro met me on friday morning and told me that my emg came back with no abnormalities , and that i could be reassured by this . . The first thing i asked was does this count as...
    • alex scared
    • Thread
    • back breathing clean emg emg love mnd mnd/als mri neurologist normal emg problem scared speech symptoms update
    • Replies: 14
    • Forum: Could this be ALS?
  4. B

    I apologize in advance....

    if i p**** anyone off, because it looks like you folks get ALOT of questions about mnd/als symptoms, that are probably silly. i will start off by saying that i am very uneducated about als/mnd...and the only reason why i found this forum is because i googled my symptoms. (stupid, i know). im...
    • babyblue
    • Thread
    • als als symptoms anxiety atrophy emg eyes fasciculations female health ideas kids mnd mnd/als mri muscles neurologist pain questions stress stupid symptoms testing tests twitching weakness
    • Replies: 7
    • Forum: Could this be ALS?
  5. D

    Progressing ALS, any hope?

    My name is Dawn, I am 39 years old with a 3 year old daughter. I was diagnosed with MND/ALS 2 years ago but had symtoms for about 3 years. Until june this year it only affected my left leg with weakness and foot drop. I was living, working travelling abroad as a make up artist. Loving my life...
  6. Alyoop

    Good Article on Classification etc

    I found this very good and easy to understand paper about the classification of MND/ALS. You may find it helpful and it may assist you in understanding that a Neurologist is unlikely to diagnose ALS/MND unless it meets these criteria. The El escorial scale was developed initially for use in...
    • Alyoop
    • Thread
    • als clinical diagnose diagnosis helpful mnd mnd/als neurologist
    • Replies: 3
    • Forum: Could this be ALS?
  7. irismarie

    supposed demographic research

    after looking at Barry's wonderful map, I wondered how much research ha been done in finding possible geographical or demographic causes so I wrote to the research dept of the MND assoc. Just look at this feeble reply (already posted to another thread on Barry's maps) I find it feeble to say the...
  8. S

    immune system research into ALS treatment

    Hi folks...came across this article today which sounds interesting......stu Novel Therapeutic Slows Progression and Extends Survival in Preclinical Model of Disease CAMBRIDGE, Mass., March 28 /PRNewswire-USNewswire/ -- In an article published in Nature Genetics today, scientists at the ALS...
    • stu2742
    • Thread
    • als als research cell data diagnosed donations early grants hope immune lou gehrig's disease mnd mnd/als progression research sod1 testing therapy treatment trial work
    • Replies: 1
    • Forum: Research and trials
  9. C

    Symposium in Berlin.

    Many of you might have read this but for those who haven't ....... ALS TDI Presents Latest Data at International Symposium in Berlin 12/17/2009 This December 8-10, nearly 900 researchers, neurologists, clinicians and others involved in the care of people living with ALS gathered in Berlin...
    • Cherry
    • Thread
    • advice candida ceftriaxone clinical conference data drugs early genetic immune mnd mnd/als movement neurology onset palliative care progression questions robert sporadic support therapy treatment
    • Replies: 0
    • Forum: General discussion about ALS/MND
  10. S

    Hiccups - need advice

    My husband is having an episode of hiccuping that has lasted most of the day. He has FTD with MND/ALS. Has anyone experienced this ? Should we seek medical advice or wait it out? :?:
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