movement

  1. G

    Tired. Scared.

    Good evening. Against the advice of those close to me, I really needed to do this. Before I begin, I did very closely read the main page on this forum and have very much taken into consideration its instruction. I take this very seriously as far as being a "DIHALS" person but can only think that...
  2. O

    detoids

    Good Morning Well, I've been following this site for a long time, but less than 4 years ago, I started to have fasciculations in my body, I've been accustomed to it, but 2 weeks ago I started having fasciculation in the right detoids, tonight, the muscle, the muscle, started to feel detoid...
  3. S

    Pregnant and Scared of Symptoms

    My name is Susan and I'm 39 years old and 7 months pregnant. I came here to this forum for opinions before my EMG next week. Time feels like it's standing still waiting. I had a scare 2 years ago. My BF of 3 years had just died of brain cancer and a few months later I woke up and was having...
  4. E

    Thanks for the answers..

    Hey guys , my english bad so please ignore it as possible. (Age:25 Sex :Male) There are weird things happening to my body since around mid of this august.Atleast i realize them(dont know). {First there was a uncontrollable(not small movement,i cant make that with same frequency) movement on...
  5. J

    Questions about NIV vs. Trach (and vent?)

    Hi everyone! I'm new here, but my dad was diagnosed with ALS in March '16, and had been showing symptoms for maybe six months prior. His progression seems to be moving pretty fast, as he is using the bipap and sip 'n puff now, and has some movement left in his lower left arm and head/neck, but...
  6. D

    Question about bad sleep.

    Hello all, I have been here before but managed to stay away for a while.(psychological therapy) Now that I have very bad sleep quality , I come back here to see if I should start to worry again.... I found out that during the night my mouth always 'falls open' and that from time to time I loose...
  7. T

    Terrified about my progessing symptoms- muscle loss, spasms, tingling

    I have been pretty much paralyzed from fear ever since these symptoms started showing up and I could really use an opinion. I know this is very long and rambling, you will roll your eyes since my symptoms appear due to injury, not disease, but please hear me out. I cannot get the thought of...
  8. D

    Praying it's not true

    Last Thursday, my 60 yr old husband (husband of 6 weeks, I should add!) was told by a neurologist that he has ALS. His only symptom is weakness in one hand which came on suddenly in June 2016. At that time, his PCP ordered an MRI and he was promptly sent to a neurosurgeon who diagnosed him with...
  9. G

    worried about symptoms

    Hello, i posted here in february about some.symptoms that caused me worries. My problems started around december last year. With twiching muscles on whole body. I also feel sometimes vibrating feeling in my legs and foot. I had two emgs thah showed increased motor neuron potencials in my...
  10. F

    Weakness after waking up

    Hi, I'll try to make this short. Any advice is much appreciated! 1. Random, continuous twitching all over for over 3 months now, plus all kinds of weird feelings, same as everybody else here. 2. EMG done at 6 weeks, abnormal but not typical ALS-abnormal. Neurologist advised follow up in 3-6...
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