movement

  1. Karvorka

    Can't keep my legs still ..

    Hi Everyone, my legs are pretty much toast but there's still some movement and I enjoy moving them while not sleeping, but while I am sleeping I get these sensations to move them like the muscles and tendons tense up and they get uncomfortable and want stretching after 15 or so minutes and I get...
  2. B

    Situation update...been awhile

    I started experiencing cramps and twitching last year. I had a "borderline" EMG last year. I have tertiary esophagus motility, slowed GI transit time. My piMax is 74 and PeMax 62.. A breathing muscle endurance test was 17%. Pulmonologist looked at a chest CT I had done last year and pointed...
  3. J

    Help with the little things...

    My dad was diagnosed in February with ALS, it has gone quite fast. He is already bedbound with no movement but in his right arm. I was wondering if anyone had in tricks or gadgets that I could buy to help him change the channel on the remote, also what about with using a cell phone. I know this...
  4. J

    Concerned that I might have ALS, or another motor neuron disorder

    Hello, everyone. I found this forum while looking specifically for an ALS support group, as I'm afraid I may have the disease. I know that the disease progresses differently for everyone, so I'd like to give my medical background and tell you all what my symptoms are and hopefully I can get some...
  5. P

    Upper motor neuron plus

    I have several of the signs of upper motor neuron involvement. Babinskis, clonus, hyper reflexivity. I have fasciculations in feet, calves arms chest. Feel and see them almost always somewhere. Right shoulder has very limited motion and is always very painful. See tone in right hand...
  6. C

    Not really sure..

    Since Nov.2011, my husband have had ten mysterious attacks that initially occurred approximately every two months. The last four months, the frequency has increased to about every five weeks. He's been hospitalized for four day stays on four of the occasions. He can't endure the ride on the...
  7. A

    Moms symptoms

    She is progressing quickly. It's strange because last night she was able to use a regular fork instead of the built up utensils. Her left hand is completely immobile and her right is at the brink of loosing all movement. I usually do her range of motion at least once a day. P.T. tells me at...
  8. S

    I understand, but don't know what to do...

    Hi there, My mom was diagnosed a few years ago. She has a feeding tube, she has a traq so is on a respirator, folley... she is bed ridden and has partial movement of one arm. She can't talk, and it's harder every day to read her lips and figure out what she's saying (which really upsets her)...
  9. S

    Checking back in, good news and bad.

    Hello all, Last time I posted I had decided to take control of my anxiety. I am happy to report that I have found a psychologist that specilizes in anxiety and I start with hime next week. My wife and I have decided to try again after her miscarriage and she is now 6 weeks pregnant. All of this...
  10. C

    Update post-neuro

    so, neuro said all my tests came back "absolutely normal", including emg's done 2 months ago (which i already knew). he tested my knee reflexes today and said they were a bit "brisk" but i told him i hadnt taken my benzo's yet today and he said thats probably why. anyways, his working diagnosis...
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