new here

  1. N

    Scared

    Hello. I am new here. I have recently been examined by 3 docotors. I believe I have symptoms of bulbar onset. My tongue is twitching, barium swallow test says slow esophagus, I have tons of mucous in the back of my throat. I have had 2 clean emgs and being told I don't have ALS, but my...
    • Nugget
    • Thread
    • als back bulbar bulbar onset new here onset scared swallow symptoms test tongue twitching
    • Replies: 7
    • Forum: Could this be ALS?
  2. A

    New here... PLEASE help me understand! I'm reaching desperation.

    Hi all, My name is Alaura. My very dear grandmother is battling MND. She has a very slowly progressing form of MND and has been battling for over 12 years. Which from my very general understanding is rare as some only get a few months. She just celebrated her 80th birthday last week. The thing...
    • Alaura
    • Thread
    • ability angel breathing denial desperation fear heart info life mnd muscle new here pain please help please help me research respiratory spasms speech stages support swallowing twitches weakness
    • Replies: 5
    • Forum: General discussion about ALS/MND
  3. I

    A year of symptoms-new here

    Hi everyone!! Okay so a year ago I got really sick and starting having some crazy symptoms. Ended up with a neuro referral and have been seeing him since. I'm having progressive weakness in my hands and arms and the neuro was able to "see" the weakness during his exam. Left hand is worse than...
    • Ivyn
    • Thread
    • brain emg lyme mri new here onset progressive weakness shaking speech symptoms twitches twitching weakness
    • Replies: 6
    • Forum: Could this be ALS?
  4. M

    Feeling so scared and alone

    Hi everyone, I'm new here. It's taken me a while to join as I just haven't been able to face it but some thoughts and opinions would be greatly appreciated My symptoms are as follows May 2014- suddenly noticed I couldn't catch my breath, would need to sleep sitting up. Sleeping very disturbed...
    • Mrsford
    • Thread
    • anxiety arm back breathing breathing issues fatigue muscle muscle twitches new here night scared shoulder sleep swallowing swallowing issues switch symptoms tests twitches weight loss
    • Replies: 19
    • Forum: Could this be ALS?
  5. M

    Is my mom giving up?

    This is my first post. My mom was diagnosed with ALS in March of 2015. It is difficult for me to see her progress as we live 600 miles apart. She told me before I got there to be prepared as she had really declined. But when I saw her I did not think her "decline" was as bad as she made it...
  6. J

    Jovidal's Thread

    Hi! I am new here also. I hope it's ok that I post here. My dad was diagnosed with ALS around 8 years ago but my mom has been taking care of him since then. Recently though my mom was diagnosed with Alzheimer's and she's been steadily deteriorating so I've taken it upon myself to take on the...
  7. V

    New here and need advice

    My father in law was diagnosed with ALS about 6 months ago. Since then he has received no treatment and doesn't want any. He has lost all of his ability to speak, he can't eat or drink anything without choking, and he has lost close to 200 pounds! I was hoping to get some advice on how to make...
    • Veedeeone
    • Thread
    • ability advice als choking diagnosed father help! new here treatment
    • Replies: 6
    • Forum: New members
  8. M

    Hi, I am new here

    Hi, I am new here but not new to ALS. Just need more support as the ALS progresses in my PALS.
  9. D

    New here! Atrophy hand, no weaknes, twitches all over.

    Hi! I must start to tell you all that my english is terrible!! I understand everything I read but I'm so bad at writing and speak my self. I hope you all will understand what I'm writing. I am 37, female that for one year ago had my second child. After the birth i noticed I had some tingling...
    • dorsia
    • Thread
    • atrophy back brain crying emg fasciculation feeling weak female fingers hope mri neurologist new here problems test twitches twitching worried worry
    • Replies: 15
    • Forum: Could this be ALS?
  10. F

    Feeding Tube Formulas More Susceptible to Clogging?

    Hi All! I am new here and am hoping that you can all help me out! I am a laboratory researcher for a medical device company. We recently started working on a technology for feeding tubes that we are going to test to see if it helps reduce the incidence of clogging. To test it, I need to find...
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