night

  1. N

    Looking to buy cough assist

    I got really great help here with where to get BPAP machine for my russian friend, he is able to sleep well with it through the night. Now I am looking for cough assist since ALS Help organization in Moscow don't have any available. Any advice appreciated where to get it cheaper Thank you
  2. Q

    Body stiffness

    Hi, I am a caretaker for my mother and I wanted to ask if it’s normal that my mother can’t stay in one position. For example, every 30 minutes she request to be transferred from her wheelchair and to the recliner. This is throughout the day and night and it’s putting a lot strain on the...
  3. K

    Extending Hospital Stay

    Hi guys, I was wondering if any of you guys had any suggestions on extending a hospital stay. My dad is currently nearing the final stages. He is completely bedridden and has been on a trach for about six weeks. After the trach was done, Kaiser sent him to a subacute facility. However, the...
    • kleptoice
    • Thread
    • anxiety back bedridden communication dad love medical medicare night nurses nursing home peg scared shortness of breath stages trach ventilator
    • Replies: 1
    • Forum: General discussion about ALS/MND
  4. C

    Praying for a Cure

    I wrote this when my husband died in 2013. It has been 4 years and in that time, a dear friend lost her son to this disease, and I have a dear sweet friend who is battling daily. “In a few hours, four years ago, you left us. Here I am, wide awake, dreading the morning. If I knew then what I...
  5. jethro

    Do shizophrenia and ALS have same roots, so it can be treatead the same way?

    i found articles... https://sg.news.yahoo.com/schizophrenia-drug-could-treat-als-101803085.html any comments? i think that having ALS is a kind of license to do everything with ourselves, so why dont we try? i am the first one to try.
  6. K

    Breathing challenge

    Starting to have episodes where I want to inhale but the muscles aren't responding. I still have about 40 percent lung capacity and use the AVAP all night and several hours during the day but even when it tries to force a breath, my lungs don't always respond. I suspect the end draws near.
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