nuedexta

  1. dkcarl62

    Nuedexta and increased spasticity?

    Has anyone taken Nuedexta and had a problem with increased spasticity? I took my first dose Thurs night, and Friday morning I froze up in the middle of my kitchen with my walker. My knees would not bend, and I couldn't walk. Not making a connection, I continued with the nightly dose, and Sat...
  2. N

    Delicate question about a crappy subject...

    I know a lot of PALS have issues with constipation but does anyone have any insight into the opposite problem? I seem to have to go all the time. It's not diarrhea but less than... optimal let's say. I'm on Nuedexta and Riluzole (although it started prior to taking Riluzole). I've cycled out...
  3. F

    Nuedexta

    Has anyone with bulbar onset had any success with Nuedexta used to slow progression and help with speech and swallowing?
  4. W

    Azilect/Resagiline

    Azilect is a drug approved for Parkinsons. It is an MAOI-B, meaning inspite of the FDA warning there are no dietary restrictions or medication interactions to worry about -- One only has to be concerned if on an MAOI-A such as Parnate. It is currently in a trial for ALS. I discovered that...
  5. Graybeard

    Cannabis Success Story

    This is in response to 4tloml in another thread. My younger son just heard from his friend in Seattle who had been losing a battle with cancer. He self-medicated with high THC oil, half grain of rice size, in a capsule. He started with as many doses as he could stand from the highs, and is...
    • Graybeard
    • Thread
    • als als symptoms back cannabis cbd free friend medical medicine nuedexta oil story support symptoms thc
    • Replies: 91
    • Forum: Research and trials
  6. Graybeard

    Question for Veterans

    Are any of you getting Nuedexta from VA? I think I read that somewhere recently. Can't get it from Long Beach VA, and my neuro wants to know. Thanks.
  7. L

    Emotional lability and Nuedexta

    I recently returned from a trip to Minnesota to see family & friends. The thought of traveling alone was a bit scary, but I decided it would be fine. After two weeks there, my friend (who I met on this forum and who has PLS) dropped me off at the airport. After saying goodbye and getting...
    • LouLou
    • Thread
    • als back clinic cry crying emotional lability family goodbye hearing nuedexta pls sad support trip wheelchair
    • Replies: 14
    • Forum: Primary lateral sclerosis
  8. S

    Nuedexta

    I took my first Nuedexta capsule which I took dissolved in a shotglass od Dr. Pepper. It tasted so awful I could barely get it down. I am unable to swallow capsules. Are you all able to swallow capsules or do you all have feeding tubes you shove the capsule down or does Nuedexta in some other...
  9. adozi

    Coupon for riluzole $30 for a month!

    Good RX dot com. Haven't tried it yet, the nurse from ALS clinic just sent it to me. Also, there is a discount card on the Nuedexta website, but it doesn't work if you have Medicare /caid, only private insurance. Would be nice, since Humana Medicare part d has decided to jack up the price to...
  10. B

    First ALS Clinic vist

    I went to my first ALS clinic yesterday...found it pretty slick to expedite the treatment of this crap! Especially the meds, generic Rilusole is only a 5 dollar copay with my insurance. I pushed for Nuedexta over Prozak, but that sh!t is expensive...200 bucks on copay(no generics). I really...
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