oil

  1. D

    Familial ALS research

    We have a long history of ALS in our family, dating back at least 4 generations (losses include my mother, grandfather, great grandfather, and many distant relatives). I was surprised to know that my family didn't have much documentation or research to pass along to me when I was diagnosed. My...
    • Dylan
    • Thread
    • age als als research back biogen breathing cannabis clinical clinical trial crying diet fals familial familial als family family history kids newly diagnosed oil progression research scared symptoms treatment weakness worried
    • Replies: 1
    • Forum: Familial ALS (FALS)
  2. JimInVA

    A Moment of Inattention...

    Started as a beautiful morning! I was up at 4AM to get a jump on the day. I'm able to do a lot of work on client computers, remotely. So early morning, before Darcey is up and about, works great. At 7:30AM, I went upstairs and greeted Darcey with hugs, kisses and smiles. The sun was...
    • JimInVA
    • Thread
    • advice back bed boyfriend burning chair dad early eyes family hours immediately oil pain shoulder shower shower chair test work wrong
    • Replies: 12
    • Forum: Current caregivers
  3. M

    CBD, THC, etc Dosage

    I'm a little confused about how one should measure dosage? mg, ml, grams. CBD oil seems to have no consistent standard. Any thoughts?
  4. Nuts

    Queens of Crap

    Today I added crap to Everything else. I was amazing, but I'm going to see crap, feel crap, and smell crap in my sleep. I love the CALS checkin thread, but it just doesn't seem the place for this kind of crap. Oh, this event took place between taking that blasted Permobile BACK in to find out...
  5. M

    Muscle Fatigue, Twitching and Cramping Following Stomach Illness

    A bit of background as you’ll probably wonder why I’m posting in an ALS forum: 31 year old male. Prior to all this I was an extremely fit, high-level competitive cyclist with few health concerns. At the end of Nov. 2015 I began to have severe gastrointestinal issue (severe cramping, LOUD...
    • Mike3rdbase
    • Thread
    • abdominal als book camp celiac cramping cramps early fatigue free immediately iron life muscle muscles oil pain shaking shoulder sleep supplements symptoms testing tests tongue twitching vitamin d weakness
    • Replies: 2
    • Forum: Could this be ALS?
  6. D

    just officially diagnosed with FALS

    My symptoms first started in November. I noticed some muscle fasciculations on my left thigh. At first they were persistent, then I didn't notice them as much for a month or so. I was very worried, as we have a long history of ALS in my mothers side of the family. We visited my father over...
    • Dylan
    • Thread
    • advice als arm back brother cannabis christmas cure emg fals family fasciculations father hip hope medical mri muscle muscles neurologist oil progression questions riluzole symptoms test weakness worried
    • Replies: 11
    • Forum: Newly diagnosed
  7. mpnatx

    Very Severe Cramps

    I know this has been discussed many times and I have always had cramping in my legs, feet, hands etc. But just recently, I've had the most severe cramps on the muscle in my left leg on the outside of my shin from my knee into my foot. My foot locks up and the pain is unbearable. A 10 on the...
    • mpnatx
    • Thread
    • back baclofen coconut oil cramping cramps foot hours muscle neurologist oil pain
    • Replies: 48
    • Forum: People with ALS (PALS)
  8. B

    Alternative Methods

    I've spent a fair bit of time reviewing the info at ALS Untangled, and from what I know, it's a reputable site for PALS re: alternative methods of treatment. The site dismisses most of the remedies out there, although does suggest that "further research" is warranted on some items - for...
    • bear1973
    • Thread
    • als cannabis coconut oil increase info oil progression research rilutek slow progression treatment work
    • Replies: 75
    • Forum: Research and trials
  9. MaxEidswick

    10 Things I Wish I Had Known About ALS

    RL Davis‎ALS We are in it together 15 hrs · 10 Things I Wish I Had Known About ALS I am not trying to sell something or say that ALS is the same in everyone, I am just trying to help by sharing some things I've learned after the fact. I never knew anyone who had ALS, so I didn't know anything...
  10. L

    Here I am... (drug question)

    long story short, thought this was a work injury with foot drop after a fall back in Feb of last year. Leg continued to be weak but manageable. FF to a few months ago, feeling weaker and having twitches. Diagnosed with 2nd opinion just recently. I feel like this is going very fast--I just told...
    • lilblackhorse
    • Thread
    • 2nd opinion als back cbd cry death diagnosed early eye foot foot drop ice kids mobility muscles oil riluzole sleep story trip twitches vacation vision walker work
    • Replies: 12
    • Forum: Newly diagnosed
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