pals

  1. R

    PALS passed away

    Hello, I have been too busy to participate in this forum by writing for the most part. I would typically get into bed at the end of the day and just look at new posts when I got an email saying there was a new post. Always too tired to log in and respond. Anyway, my husband passed away in...
  2. A

    PALS Having a Harder Time Breathing - Would Love Your Thoughts

    Hello Everyone - I posted a few times in the winter soon after my best friend was diagnosed. I’ve been back here to find info many times - which was very helpful! - but haven’t posted in a while. The quick update: P. has lost the use of one arm completely; can still walk, but barely (wheelchair...
  3. Nikki J

    Online survey for PALS

    https://wustl.az1.qualtrics.com/jfe/form/SV_a9wIWEPPwuzT9Qi
  4. M

    PALS opposed to feeding tube

    Hello, I haven’t posted in a while but my husband was diagnosed august of 2022 with limb-onset ALS. Even though he was diagnosed as limb-onset, it quickly moved into the bulbar region. His left arm/hand (where we thought it started) is now pretty much paralyzed but the main things that have...
  5. Tomswife

    PALS or CALS

    Is there a way to know if a member is a PALS or CALS. If I click on their name I see their stats but that's it. Thanks.
  6. Tomswife

    Cant pull PALS forward to put sling behind him.

    Our caregivers are stronger and younger than I am. I used to be able to pull him forward. But now with weakness and paralysis I cant do it. Are you leaving the sling in place??
  7. KimT

    Helpful things for PALS/CALS

    Nikki started a thread several years ago and we added more suggestions of things that have helped. We had originally posted it in the PALS section, but I thought it might get more attention in the general section...
  8. Tomswife

    How to care for PALS who is bedridden

    I found a good article online. Zaggocare dot org How To Care for Someone Who Is Bedridden at Home
  9. Tomswife

    Need advice. A way for PALS to call me

    We need a way for PALS to call me (signal me) if I am not in his room. We were using the CALLTOU bell (amazon), but PALS can no longer push the button. He has a weak voice. Cant move arms much or use fingers. Can nod head and move legs. Wondering if there is a solution.
  10. Tomswife

    Patient Advocate - a resource for PALS

    Mission Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit organization which provides case management services and financial aid to Americans with chronic, life threatening and debilitating illnesses. If you find you are struggling to pull together care resources, a Patient...
Back
Top