paralysis

  1. J

    I don't know if I should back to neuro.

    Hello all, My name is Josh. I am 39 years old. My family has 4 generations of ALS. My mother has it, my grand-mother died of it, my great grand-father died of it, my great great grand-father is believed to have died of it (but his death certificate says "creeping paralysis") and my mother's...
  2. L

    Lesions

    Hi guys. I have had 2 huge lesions in my spine. I have been reduced by plasma exchange twice. I have tested positive for anti body receptor glycine and my question is in all will lesions form and cause rapid paralysis needing a plasma rescue? Thanks laura
  3. C

    Another scared person

    I have another 6 weeks before I get in to a neuromuscular specialist, so I'd love to have my mind eased (or prepared for the worst?). I am a 41 year old woman. I was diagnosed with SLE (Lupus) a few months ago. Over 4 months ago, I also started having symmetrical severe weakness and near...
  4. P

    suggestions, recommendations appreciated

    we are behind in getting equipment for als / paralysis. i spent the first two years of this, researching and trying experimental treatments. my wife and i went to Thailand for 7 weeks chasing stuff. drove out to Colorado, spent 7 weeks there, chasing stem cell. my body continued losing...
  5. A

    Bulbar questions

    I'm still waiting for an appointment with a neurologist, which won't happen until the end of June. My symptoms started early November when friends started asking if I'd been drinking due to increasingly slurring speech. I also noticed profuse saliva when I would sneeze. By January, the...
  6. W

    Throat clearing and bulbar ALS

    Hi everyone. Thank you for taking the time to respond. I have a question about some symtpoms I have been having. Recently I got a head cold or sinus infection. There is a good amount of post nasal drip that I have been experiencing. However the post nasal drip started back in April. I would find...
  7. N

    Important question

    When you have deteriorated to the point of going on yourself and near total paralysis, is removing the breathing mask that keeps you alive considered suicide?
  8. D

    Masitinib phase 3 !

    PARIS, April 4, 2016 -- AB Science Announces Positive Interim Results from Phase 3 Trial of Masitinib in Amyotrophic Lateral Sclerosis (ALS) (also known as Lou Gehrig's disease) Company to Host Webcast on Masitinib in ALS in the Coming Days AB Science SA (NYSE Euronext - FR0010557264 - AB), a...
  9. I

    very strange symptom suspect als

    please help me and I know I am annoying Hello guys, I am so sorry to bother you. But there is really something wrong with me. First I am a university student who major in neuroscience.Ok my symptoms started last semester. When i played the piano I started to feel uncomfortable on my right calf...
  10. S

    New symptoms

    Hello everyone, My husband has been experiencing some new symptoms. These started on or about February 3rd. He had blood drawn that day and also did pt. At that time neither us or the physical therapist knew that it was somewhat detrimental to work out too hard. After we left that day, he...
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