power

  1. R

    Use it or lose it?

    Sorry I stole that from someone else's post but I couldn't think of a better description of what I wanted to ask. I was diagnosed in January 2014. I quit working in July. Once I quit working, I start spending more more time at home either sitting in the chair or laying down in bed using my iPad...
    • ralsip
    • Thread
    • ability accessible van bed chair diagnosed driving lift muscle power power wheelchair transfer van walker wanted wheelchair
    • Replies: 13
    • Forum: People with ALS (PALS)
  2. C

    The Good and The Bad

    Last week, Patti and I went to the clinic and also met with our regional ALSA rep. Some good and some bad has come of this. The Good: People are cracking, and we're starting to get equipment and other needs fulfilled. Patti's power chair has finally been approved (only took 6 months of games...
    • Calvin-CALS
    • Thread
    • alsa breathing chair clinic cough assist eating equipment fatigue fear fvc hope hoyer hoyer lift insurance life lift long term care insurance medical power power chair respiratory sling suction support trip van
    • Replies: 17
    • Forum: Current caregivers
  3. lgelb

    Two beds

    Two beds for sale, possibly one for caregiver and one for PALS. Bariatric (or not) 36x84" hospital bed w/ Linak motors and 6" medical grade foam GeoMatt mattress (covered in vinyl; wipes clean). Uses twin XL fitted sheets. All four power functions (head, feet, tilt, bed height to 24" off...
  4. P

    Handicap Van

    My PALS friend lost his battle with ALS 2wks ago....Widow has 2012 Dodge Caravan...27000 miles...under floor ramp...passenger side power wheel chair lockdown....excellent condition....26,000 dollars....please call Melva Heavin....417-634- 4452....Sparta, MO...
  5. R

    equipment

    My wife was diagnosed with ALS 2 years ago. It has been rather slow in progressing. She was using power scooters and going to move to a power wheelchair. We just got a hospital bed and are considering a Hoyer lift. Does anyone have any advice? We always seem to be behind the curve. She is...
  6. gooseberry

    so much equipment

    Initially it didn't seem like much, a bipap here, a peg tube there. Today a physical therapist did a home eval and based on what he saw recommended ramps, hospital bed, new flooring, new manual and power wheelchair, lift for van, new trilogy and cough assist machine, commode chairs, shower...
  7. Jeanau

    New to the group

    I'm a happily retired educator who was sadly diagnosed with ALS last month. The time it took to arrive at my diagnosis was short. I started looking into my leg weakness in September, was tentatively diagnosed on December 4th, and officially dignosed by the ALS specialist at Pitt (David...
    • Jeanau
    • Thread
    • als diagnosed diagnosis dying lifts onset power stair lifts support voice weakness
    • Replies: 21
    • Forum: Newly diagnosed
  8. L

    Power Wheelchair Control

    Hi All, My name is Lucas and i am from Argentina. I am usual reader of the forum but not quite so participant because of my poor english mainly. I have one question. Currently my wife has a manual wheelchair, but she can`t move her arms and we are now getting a power wheelchair. Our doubt is...
  9. J

    Keep the Faith

    I've had something on my mind lately that I would like to share with everyone. 4 years ago this coming April, after spending 42 days in the hospital and the last 7 months flat on my back in the bed after going on a ventilator, I was being prepared to be released to go home in the next few days...
    • JAKE
    • Thread
    • back bed bedridden chair death early feeding feeding tube hope lead life oxygen power power chair van ventilator work
    • Replies: 8
    • Forum: Stories of hope
  10. D

    Weirdest reaction ever!

    My husband works a few hours a week at a backyard birding shop. Seed is delivered early on Monday mornings while the store is closed. Unloading and storing the seed takes only an hour or so, so I listen to a book rather than have my computer set up as I usually do. And rather than being in the...
    • Diane H
    • Thread
    • book chair cold confused early eyes hours power power chair ventilator wheelchair
    • Replies: 10
    • Forum: People with ALS (PALS)
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