power

  1. Doglady

    PWC, doors and hallways

    For the past month I've been using a power wheel chair loaned to me by the local ALS Association that is exactly the same as the one that is being ordered for me. My wheel chair is a little less than 25 inches wide and if i go slowly it does fit through all of my 28-30 inch doorways and...
  2. KarenNWendyn

    Permobil vs Quantum power wheelchairs

    I posted recently with questions regarding the Permobil F3 (I’m currently borrowing one from my loaner closet and like it so far). That previous thread is here: https://www.alsforums.com/forum/general-discussion-about-als-mnd/42619-question-you-wheelchair-geeks.html I did receive a gift of a...
  3. H

    Help on Trach

    Hi , my name is Jennifer and my mom is diagnosed as ALS last year(8/2017). Recently, her pulmonary doctor recommended my mom for the trach due to using 24 hours of trilogy. i am also researching about it but couldnt find the answer or opinion that that my mom has after she gets trach (Note: She...
    • Hjlee
    • Thread
    • als diagnosed feeding feeding tube fingers food hours lift movement power power wheelchair questions riluzole surgery trach trilogy wheelchair
    • Replies: 3
    • Forum: General discussion about ALS/MND
  4. Nuts

    Free Permobile 300

    We have an older Permobile 300 that my husband bought as a backup to his backup. We put a new controller, batteries, and tires one it a couple years ago.. While it came in handy a few times, he can no longer use this chair. Power recline, tilt, and lets, but no elevator. Free to a PALS in...
  5. M

    Question about NIPPV machine

    My dad has respiratory onset ALS diagnosed in May 2017, he still has full use of his hands and his speech and swallow are only minimally affected but he is really really weak can only walk assisted for 2 or 3 steps so he has a power wheelchair for getting around. At first he would only need...
    • mrsharris
    • Thread
    • age als breathing dad diagnosed night onset power power wheelchair respiratory respiratory onset speech swallow wheelchair
    • Replies: 3
    • Forum: General discussion about ALS/MND
  6. Kristina1

    frightened by another post

    The post in general forum about eye lid surgery frightened me. I was under the impression that all or vast majority of pals can use eye gaze communication indefinitely despite body becoming fully paralyzed. At this stage in my disease my feelings are that I want to continue to live for as long...
    • Kristina1
    • Thread
    • age communication eye eye gaze eyes life locked in paralyzed power quality of life scared shower surgery vent
    • Replies: 4
    • Forum: People with ALS (PALS)
  7. D

    Veterans with ALS need to do these things

    I would tell all veterans that deal with the VA and have been diagnosed with ALS to do the following. 1. Get with the Paralyzed Veterans Association (PVA). Let the PVA fight the VA for you. When I was diagnosed with ALS at the Mayo Clinic in Jacksonville, FL the ALS Association...
  8. B

    Enfolding Prayer

    *Ephesians 6:18 And pray in the Spirit on all occasions with all kinds of prayers and requests. With this in mind, be alert and always keep on praying for all the LORD's people. *Psalm 55:17 ESV Evening and morning and at noon I utter my complaint and moan, and he hears my voice. *2 Timothy...
  9. jethro

    Extreme hunger

    for some (un)known reasons, i'm obsessed by hunger. i change my diet (less bread, sweet, less food intake etc.). i hardly walk, maybe 2000-3000 steps/day, so i dont waste energy, but hunger drives me crazy. i'm surrounded by the food i dont use anymore (cakes, sandwiches, beverages, sweets...)...
  10. jethro

    Detoxi(fi)cation with green ventilated clay

    hello, many people tried many things to slow down als. i wonder - did anybody triy detoxication with green ventilated clay for oral use through 3 weeks? i'm on rilutek for one month (started on july 1st) and i obviously have to pause it, cause clay (hidratized alumosilicate) and rilutek goes...
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