problems

  1. S

    Genetic testing??

    My husband was dx. In dec. 18 we have very little past family history due to the fact that his maternal grandfather was adopted with no records and his paternal family have all died at young ages ( under 50) except for his father as of now who is 48. Reed is 28 and I am just curious if we...
    • samnikolep
    • Thread
    • back balance cry depression eye family family history fasciculations foot genetic genetic testing increase pain problems progression research sad symptoms testing vision vitamin d weakness young
    • Replies: 2
    • Forum: Newly diagnosed
  2. I

    Drugs and PT for PBP?

    I was diagnosed with PBP a year ago this week. I frequently check in and read most of the posts for the day. It just dawned on my husband and I that none of the four neurologists I have seen have mentioned physical therapy or drugs that might delay the progression of this beast. Until about...
    • Idaho2790
    • Thread
    • als bipap botox breathing christmas clinic cough assist diagnosed drugs exercise health life pbp physical therapy problems progression saliva speech swallowing therapy walker
    • Replies: 1
    • Forum: Progressive bulbar palsy
  3. N

    Does this sound like bulbar onset?

    Earlier this week whilst driving my car I started whistling along to a song and not much sound was coming out, this is strange because i normally have a very strong whistle. I got worried and panicked a bit. Fast forward to this morning, I tried to get my dogs attention and went to make that...
    • niknakx
    • Thread
    • ability advice anxiety bulbar bulbar onset driving early family life lump onset problems speech swallowing worried
    • Replies: 5
    • Forum: Could this be ALS?
  4. K

    Trouble with Sentry 1400 Low Air Loss/ Alternating Air Mattress

    Hi all, hoping someone can help with our problems with the alternating air mattress. Just had this delivered from the ALS closet on Thursday. First two nights, she finally slept till 5am, instead of 2am. That was good. Last night she slept badly. But the rest of it is a disaster. She is so...
  5. K

    My Husbands Worried.

    Hi all, thank you for allowing me to join and be able to post here. I've been on this website a lot since October 2017 and I'll explain why. My husband, who is 31 years old began getting some twitching in his muscles in or around October 2017. He went to his GP for around two visits before the...
    • Kbel88
    • Thread
    • ankle anxiety back bfs emg manual mnd muscles neurologist night problems reading story stress tests twitches twitching vitamins wanted weakness website worried worry
    • Replies: 5
    • Forum: Could this be ALS?
  6. A

    Back after 5 years... still worried

    In 2012 fasciculations started. I also have pin and needles and some other little things. Went to the neurologist, he did some tests and diagnosed me with BFS. Slowly my worries disappeared and I went on with my live. I'm 42 years old now and a mum of 4 kids. But... since 2014 I got some...
    • Antologia
    • Thread
    • back bfs choke diagnosed fasciculations health kids neurologist problems scared swallowing tests worried worries wrong
    • Replies: 5
    • Forum: Could this be ALS?
  7. D

    My dad's progessive weakness - concerning?

    Hi all, I'm a 25 year old male from Detroit and my dad is 53 years old. This post is about my dad. Background info: my dad has plenty of other health problems that make weightlifting harder for him, including arthritis in his knees, a bone spur in his back which causes a lot of pain and some...
    • dadcantbench
    • Thread
    • als anxiety dad emg family health hope info neurologist pain problems progression questions reading surgery weakness
    • Replies: 1
    • Forum: Could this be ALS?
  8. T

    So much air!

    My Dad got his tube in early December. We've tried both gravity and now pump feeding. He is just not comfortable. He can't get down more than 3 cans a day without being miserable. We've tried the first 1.5 calorie formula, a higher 2.0 calorie formula, and a 1.5 with lower fiber. We are...
  9. Doglady

    Limb onset question

    Hello all! It's certainly great to be a part of this group of experts - and I do appreciate all the helpful advice I've received and read in past messages on various topics. The knowledge and wisdom here is awesome and I've learned a lot! So, where else would I go when I can't figure...
    • Doglady
    • Thread
    • advice als als symptoms als? ankle confusing cramps diagnosed diagnosis early exhaustion foot helpful magnesium onset problems progression sporadic symptoms symptoms of als weakness
    • Replies: 6
    • Forum: People with ALS (PALS)
  10. G

    Twitching Hotspot and Muscle wasting

    Hey Guys first of all i wanna say thank you for this great community and a happy new Year . I´m from Germany so - sorry for my "bad" english. i´m 29 years old engaged and i have a lovely little boy and a wonderful Wife. Active in sports like Karate and some Fitness. 1 Year ago it started...
    • Gerskin
    • Thread
    • arm emg fasciculations fingers foot hope muscle muscle wasting muscles problems shaking symptoms thumb twitches twitching worry
    • Replies: 2
    • Forum: Could this be ALS?
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