questions

  1. KarenNWendyn

    Physical therapy questions

    I've seen some discussion about this in other threads and also read a lot on line, but I thought it would be good to have an updated discussion about the role of PT in ALS. I've read that some light aerobic and even light weight training is beneficial for stabilizing neuromuscular junctions...
  2. L

    Update - 2nd Abnormal EMG

    Hi folks, I did try go back and post in my original thread (took some searching) but its been closed. Decided to give an update and ask some questions, if I may. Maybe someone was following my story Anyway, I've since been to my second neurologist, a neuromuscular specialist in Manhattan (at a...
    • lollypop
    • Thread
    • age als? back battery clinical diagnose diagnosis dihals emg falling fatigue fingers is this als life mri muscle neurologist questions story support symptoms test timeline twitches update weakness work
    • Replies: 5
    • Forum: Could this be ALS?
  3. M

    Doubts after 1 year!

    Hi everyone, After 1 year suffering worrisome symptoms that could be linked with ALS, I have took a clinical neuro exam without any patological reflexes and without clinical weakness. On the other hand, I keep on cycling (journeys of 82 km at 22kmh in average) and running (in spite of my right...
    • Marius
    • Thread
    • als clinical diagnosis onset questions running support symptoms weakness
    • Replies: 3
    • Forum: Could this be ALS?
  4. Jackfishem

    Long term care insurance

    My mom passed away in January of 2017 after a year long battle with ALS. Her brain was autopsied and markers of the c9 mutation were found. Now that I know what to test for, I would like to have genetic testing done. I know I need to obtain long term care insurance before the testing and would...
  5. J

    Als worries or should I move on

    dI have questions about my symptoms, have read a lot so hopefully won't waste your time, but please know I value your time: Symptoms: Started with tingling all over (which I know is not ALS symptom) and twitching, twitching all over but mainly in thighs, calves and feet, both sides. Twitching...
    • jalapeno
    • Thread
    • als book clinical decline fatigue lyme movement muscles questions spasms symptoms twitches twitching weakness worries
    • Replies: 4
    • Forum: Could this be ALS?
  6. S

    Concerned/Worried about ALS

    Hello, First I want to thank everyone for their time to even reading this post. I can only imagine how annoying/frustrating it must be to deal with people like me. I guess I'll start with a background: I am a 20 yr old male (I know a bit young and I have an incredibly small chance) who is a...
    • stoneyboy
    • Thread
    • age als ankle anxiety clinical concerned cramps foot genetic ice immediately improvement increase ms? muscle muscle twitching questions reading risk shaking shortness of breath sleep stress tests twitches twitching weakness worried worried about als young
    • Replies: 7
    • Forum: Could this be ALS?
  7. P

    Is this ALS? Or can ALS improve?

    Hello I have some health problems for 5 months now and it is destroying me. And I have some questions for you to clarify what docs could not. It started with twitching in legs mostly in thighs and calfs but it became widespread. Next I started felling a weakness after some sport activities. Like...
    • Peter999
    • Thread
    • als als? cure diabetes emg familial fasciculation health hope improvement is this als is this als? meds pain person with als problems questions stress symptoms twitching weakness worry
    • Replies: 4
    • Forum: Could this be ALS?
  8. B

    anxiety is destroying my life

    Hello, I've been trying to put off posting here. Like many here, i've read and read and read. Medical sites, aboutbfs, and of course this site. I've gotten to the point where my previously diagnosed anxiety is making me lose sleep and worry uncontrollably throughout the day. I am a 24 year old...
    • brendon
    • Thread
    • abuse anxiety back bfs diagnosed diet early emg fingers hope life medical meds muscle muscle twitch problem questions ring finger sleep statistics tests thumb tongue twitches twitching wanted worry
    • Replies: 6
    • Forum: Could this be ALS?
  9. gigem

    Wife diagnosed with bulbar ALS - some questions

    Hello all. My 52 year old wife was recently diagnosed with bulbar onset ALS. Initial diagnosis was by a neurologist Dr. Greg McLauchlin at Baylor, who then referred us to Dr. Harati at Baylor who confirmed the diagnosis a few weeks ago. Obviously it's been a very rough few months for us...
    • gigem
    • Thread
    • als breathing bulbar bulbar als bulbar onset clinic clinics diagnosed diagnosis early feeding insurance kids neurologist onset questions slurred speech speech vacation wife
    • Replies: 14
    • Forum: Newly diagnosed
  10. J

    Strange Combo of Symptoms

    Hello....I was hoping to get some feedback on this combination of symptoms. (36/m) I've had random twitching before and haven't thought much about it. A bicep here a quad there, calf/hamstring, face, etc. However recently I've either developed more of this more frequently or I'm just noticing...
    • jaxson
    • Thread
    • anxiety balance crying foot health kids muscle neurologist night onset questions scared surgery symptom symptoms twitches twitching weakness
    • Replies: 58
    • Forum: Could this be ALS?
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