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  1. C

    My first post, just diagnosed the other day

    I have been on the sidelines reading thru different threads and searching for answers for some time. I received my diagnosis the other day. Slowly Progressive ALS, I understand I am very fortunate that my disease progressing is very slow, but the reality is still hard to comprehend, especially...
    • Cab6711
    • Thread
    • als clinic diagnosed diagnosis family ice mnd progression questions reading slow progression
    • Replies: 18
    • Forum: Newly diagnosed
  2. F

    symptom / doctor questions,, please LQQK

    Hi everyone, I have been reading through the forums for a while now and decided I needed to post .. I have read so much conflicting information that its making my head hurt .. I will try to keep as short as possible.. About 3 months ago out of nowhere I had a muscle spasm /twitch...
    • fr4racing
    • Thread
    • arm back death emg family go away helpful hours information muscle muscle twitch pain questions reading symptom tests twitch twitching wanted weakness work worried
    • Replies: 5
    • Forum: Could this be ALS?
  3. E

    Thanks for the answers..

    Hey guys , my english bad so please ignore it as possible. (Age:25 Sex :Male) There are weird things happening to my body since around mid of this august.Atleast i realize them(dont know). {First there was a uncontrollable(not small movement,i cant make that with same frequency) movement on...
    • elsha
    • Thread
    • age als angry arm atrophy back balance ball clean emg clothes cramps diagnose eating emg hope hours ideas ignore life movement mri muscles pain problems reading reflex sleep speech test twitches video wanted weakness young
    • Replies: 3
    • Forum: Could this be ALS?
  4. J

    Questions about NIV vs. Trach (and vent?)

    Hi everyone! I'm new here, but my dad was diagnosed with ALS in March '16, and had been showing symptoms for maybe six months prior. His progression seems to be moving pretty fast, as he is using the bipap and sip 'n puff now, and has some movement left in his lower left arm and head/neck, but...
    • JennAudrey
    • Thread
    • advice als arm bipap caregivers choking cough assist dad diagnosed heart helpful movement neurologist new here peg progression questions reading suction swallow symptoms trach vent
    • Replies: 11
    • Forum: General discussion about ALS/MND
  5. D

    Still concerned

    Hi I am now experiencing a variation in existing symptoms and new symptoms. The initial twitching from May 2015 has pretty much disappeared, unless I have really exerted myself during the day. Any muscle I use fatigues much more quickly. I am a seasoned singer and my speaking voice (despite...
    • DPJ1375
    • Thread
    • age back bulbar bulbar onset clinical concerned eating emg father mnd mucus muscle onset reading saliva swallowing symptoms twitching voice
    • Replies: 9
    • Forum: Could this be ALS?
  6. K

    I give up

    I have been on this forum for over 7 months now and I still can't figure out how a lot of things work. I have never been on a forum before this.(I admit, I was called a " technotard" by my colleagues at work.) After 3 months of reading only, I got my nerve up and made a comment on someone's...
  7. C

    If you have ALS - please read.

    Hello All, I am new to the community and I do not have ALS. I do however have extreme panic and anxiety disorder and hypochondria. On my relentless search for answers I have read countless articles and stories of PALS. I just want to take a second and thank you for all of the time and effort...
    • Chikid
    • Thread
    • als anxiety awareness cure hypochondria life night questions reading stress
    • Replies: 2
    • Forum: Could this be ALS?
  8. C

    New to the community - looking for help.

    Hello All, I would first like to thank you for your time and any responses I may get. I'm honored and humbled to be here. I'd like to preface this post with a disclaimer; I am a well documented hypochondriac. Although this disease is not nearly as traumatic as some of you with motor neuron...
    • Chikid
    • Thread
    • advice als anxiety back early falling fasciculations fasiculation father fingers go away life lift medicine motor neuron disease muscle neurologist pain reading ring finger shoulder swallowing swallowing issues symptoms tests thumb tremor twitches weakness
    • Replies: 13
    • Forum: Could this be ALS?
  9. A

    Wife recently diagnosed

    Hello to all. My wife was diagnosed 3 weeks ago with ALS. Looking back on her symptoms, I believe she has had the disease at least a year. Due to long standing lung and swallowing issues, none of her many doctors put the pieces of this puzzle together until her home Physical Therapist...
    • Abaree3
    • Thread
    • als back bed caregivers communication cough assist diagnose diagnosed diagnosis hope neurologist peg power power wheelchair reading swallowing swallowing issues symptoms trilogy walker wheelchair wife
    • Replies: 18
    • Forum: Newly diagnosed
  10. S

    Concerns for thenar atrophy

    Hello all, I've been a visitor to this site several times before and am truly grateful for the people on here and the information I've gained from reading your posts. My story: I've been twitching body wide for about 5 months now. I received a 3 limb EMG 3 months after the start of symptoms...
    • skeasler
    • Thread
    • als arm atrophy bed bfs emg information new member reading story symptoms thenar twitching weakness worries
    • Replies: 6
    • Forum: Could this be ALS?
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