Hello,
I am new to this forum and my mother in law has been diagnosed with FALS (we do not know what gene yet). She has 6 siblings, 3 of which were diagnosed with ALS in the past in their late 50's to mid 60's. My mother in laws mother is in her 80's and DOES NOT have ALS, she has also...
Hi all,
I'm hoping someone can point me in the right direction here. I turned in my resignation at work, however, they know my situation and have put me on FMLA/short term disability instead. It will last for 12 weeks and allows me to still receive some income and also keep my current...
Hello,
First I want to thank everyone for their time to even reading this post. I can only imagine how annoying/frustrating it must be to deal with people like me.
I guess I'll start with a background:
I am a 20 yr old male (I know a bit young and I have an incredibly small chance) who is a...
So, next week is my first appointment in the ALS Clinic.
Any idea what to expect/see?
I don't think this is headed anywhere good. My last EMG came back with no denervation but I definitely have a muscle in my right calf that is flaccid. It is 1.5" smaller than the left side.
My...
We just returned from our four-week long spring trip to Yellowstone. We stayed in the Madison campground (in our trailer) for 29 nights. It was a wonderful trip and I will write a trip report for it soon.
One adventure we did not expect was the need for me to have an emergency root canal. I...
One of the great purposes of true love is to help each other in turbulent, challenging times. No one ought to have to face such trials alone. We can endure almost anything if we have someone at our side who truly loves us, who is easing the burden and lightening the load. In this regard...
Hi,
I should begin this by saying that, yes, I am very much an anxious person. That being said, I'm really concerned/confused by some of the genetics data I received in my promethease report (tested by 23andme), and was wondering if anyone more familiar with the studies and genetics behind ALS...
als
als?
atrophy
confused
data
emg
family
family history
genetic
information
muscle
muscle twitching
pain
questions
reading
research
risk
stress
symptoms
twitching
worry
Hi everyone!
I am Anna and I am 26years old from Sweden. I have recently lost my mom to Als and know that we have fals in our family. I have not done the test since it can only confirm if you have the desease but not that you don't. But I have read a lot about what might trigger/cause ALS and I...
Sorry for all the noob posts. Talk to me about my aspiration, how dangerous is it, and is there anything (like a medication) that could reduce how often it happens?
I aspirate on liquids constantly. Basically every time I drink anything, I aspirate at least once, usually more like 3x. Often...
Hi All,
As most of you know we have been at this for a very long time. You may have been told that ALS will not affect your bladder/bowels. That may be the case if your PALS goes quickly, but if you choose to vent and they stick around longer than the suggested time frame, you may end up...