robert

  1. D

    trying to cope with this....

    well robert has taken another turn down the latter, This new has us all on the downside. his wife is ready to go around the bend. everyone is tierd. Robert started this morning with breakfast just fine only eat the berries, cerial makes him choke, so i said ok we will eat something in a couple...
  2. D

    trouble with coucking and spit

    Hello Everyone, I hope all is as good as they can be. I have been taking care of my friend robert for the last 3 years and he has slowly lost his abilty to move and for the last few month been using the lift to get him to his chair and the commode, setteled in to it just fine but came to...
  3. Robert Redmond

    Hello

    This is my first time to these forums. My name is Robert and about 2 weeks ago my brother was told he was in the last stage of ALS. He had lost pretty much all control of his legs and most of his arms/hands at that point. Originally, a year ago, he was tested by his neurologist who told him he...
    • Robert Redmond
    • Thread
    • age als breathing brother clinic depressed diagnosed genetic heart hope love muscle muscle twitching muscles neurologist oxygen planning problems robert sad swallowing treatments twitching weakness worry
    • Replies: 5
    • Forum: General discussion about ALS/MND
  4. Just J

    Fiesta 5k

    Recently a friend asked me to participate in a half marathon that will take place in June. I am not a runner and never have been. In spite of this obstacle, I began a 9 week ramp up program and quickly realized that a half marathon was a bit much of a task for a first time runner. I began...
  5. C

    Symposium in Berlin.

    Many of you might have read this but for those who haven't ....... ALS TDI Presents Latest Data at International Symposium in Berlin 12/17/2009 This December 8-10, nearly 900 researchers, neurologists, clinicians and others involved in the care of people living with ALS gathered in Berlin...
    • Cherry
    • Thread
    • advice candida ceftriaxone clinical conference data drugs early genetic immune mnd mnd/als movement neurology onset palliative care progression questions robert sporadic support therapy treatment
    • Replies: 0
    • Forum: General discussion about ALS/MND
  6. S

    more good news

    There seems to be a lot of encouraging news about research at the moment..here's another article I came across this morning....cheers stu Science News Share Blog Cite Print Email BookmarkCompound Shows Potential For Slowing Progression Of Lou Gehrig's Disease ScienceDaily (Oct. 20...
    • stu2742
    • Thread
    • als blog brain cell clinical cure death free friend health iron medical medicine muscle muscle wasting natural neurology onset oxygen paralysis professor progression research risk robert sad sod1 sporadic stroke surgery symptoms symptoms of als therapy treatment treatments unknown wanted work
    • Replies: 7
    • Forum: Research and trials
  7. V

    news

    Some of you may have already read this article, but in case this has not been posted before... This comes from the Science Daily site. New Guidelines Identify Best Treatments To Help ALS Patients Live Longer, Easier ScienceDaily (Oct. 14, 2009) — New guidelines from the American Academy of...
    • vmd
    • Thread
    • als breathing clinic cure early feeding feeding tube food increase lead life lou gehrig's disease medical muscles neurology nutrition onset peg problems quality of life riluzole robert swallowing symptoms treatments
    • Replies: 19
    • Forum: Stories of hope
  8. rocmg

    First 'Neuroprotective' Gene In Patients With Amyotrophic Lateral Sclerosis Isolated

    ScienceDaily (May 11, 2009) — A genetic variant that substantially improves survival of individuals with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, has been indentified by a consortium of researchers led by John Landers, PhD, Associate Professor of Neurology and...
    • rocmg
    • Thread
    • ability brain chair death early familial familial als genetic improvement increase lou gehrig's disease medical movement muscles neurology paralysis professor progression respiratory respiratory failure riluzole robert sod1 treatments
    • Replies: 25
    • Forum: Research and trials
  9. rocmg

    Al Gore on board for $20M stem cell venture

    saw this and it gave me my daily injection of hope. i would be curious to know if, with all the good things that are bound to occur in science in the next ten years, would this change PALS minds to vent? My mum is determined not to vent, although it is something we haven't talked a great deal...
    • rocmg
    • Thread
    • age atrophy cell diabetes drugs early embryonic food genetic heart hope lou gehrig's disease medical robert stem cell stem cells technology test treatments usa vent
    • Replies: 2
    • Forum: Research and trials
  10. T

    Scared and Confused

    Hi I'm new here. My name is Tim and I'm from NYC. I'm a heretofore youthful and energetic 60 yo man. I do have and have had essential tremors for years in my left hand. I also crack my neck and lot and usually have neck pain and stiffness. The cracking also makes my face and fingers go a...
    • Tim C
    • Thread
    • als? arm back bed cold confused cramps fingers food hiv lift lyme muscle neck pain new here night pain robert scared stiffness story students thanks. tim weakness work
    • Replies: 26
    • Forum: Could this be ALS?
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