sleep

  1. S

    I've just begun the slow journey of diagnosis

    Hi ALS members from beautiful South Australia. I wanted to post some of my symptoms, not that I believe I can get a Yes or No. In a way I just need someone to listen to me as I'm too upset to share with close friends, or other family members other than my wonderful wife and two boys. My wife...
    • SnowyOwl
    • Thread
    • als atrophy back burning chair cramps diagnosis early emg fingers ideas lift mnd onset pressure problem progression research sleep support symptoms test tiredness twitches wanted worry wrist
    • Replies: 9
    • Forum: Could this be ALS?
  2. D

    Myths about hospice care

    Myth No. 1: Hospice care is only intermittent. The truth: There are multiple instances of PALS who have needed and received 8, 16, or even 20 hours per day of in-home nursing shift care. Unless a patient’s insurance plan clearly and specifically limits it, there is no limit to the amount of...
    • Dave K
    • Thread
    • age bed cals clothes equipment exercise fatigue headaches health hospice hours insurance life mobility positioning research sleep symptoms therapy tracheostomy transfers
    • Replies: 87
    • Forum: General discussion about ALS/MND
  3. C

    Good News

    I was concerned with symptoms of ALS. I've had twitch all over my body, first in the legs, then all throughout my body. This has been with me for the last year or so, but progressively got worse. I got much more concerned when I had carpal tunnel symptoms, which progressed into an...
    • crinzema
    • Thread
    • als breakdown bulbar bulbar onset emg life neurologist onset scared sleep symptoms symptoms of als test tests tongue twitch
    • Replies: 2
    • Forum: Could this be ALS?
  4. A

    (DBQ) Disability Benifits Questionare

    I have PVA as my rep and they also want a DBQ to file claim even though my VA medical records under active problems they have ALS and the VA Doctors from Nuerology and Pulminary refused to sign one. I have been to a Neuro outside VA and they even refused as well as just agreed with VA. My...
    • art1959
    • Thread
    • als clinics atrophy back breathing brother clinics cough assist denervation disability emg grant ideas medical muscles problems saliva sleep test
    • Replies: 9
    • Forum: Military veterans and the VA
  5. N

    why does he sleep so much..

    Hi Everybody, I only posted a few times in the Newly Diagnosed section. And I find it very difficult to post anything... My dad has been diagnosed in November. He's in Europe, I'm in the US. Where he is, healthcare really sucks, and I find myself asking questions on different forums, or taking...
    • NotMyDad
    • Thread
    • advice als breathing breathing problems bulbar bulbar onset dad diagnosed newly diagnosed onset pressure problems questions sleep swallowing worldwide worry
    • Replies: 16
    • Forum: Current caregivers
  6. M

    Concerned

    I want to preface this post by saying I have already sceduled an appointment with my doctor in two weeks. I would also like to say that it's incredible and inspiring to read the stories of those afflicted with the disease, and to see that some who are fighting it would lend their time to answer...
    • mommyof2boys
    • Thread
    • advice age back balance concerned cry early family fear fingers frustrated ignore immediately insurance night questions scared sleep spasms symptom symptoms tests twitch twitching twitching and clumsiness weakness worried worry
    • Replies: 12
    • Forum: Could this be ALS?
  7. H

    Hello All My Good People

    Hello everyone, My username says help1127 and I have been trolling this site plus asking questions for 3 years or more. through all of this I have many symptoms on top of that I have seen 4 neurologists and 3 ALS neuromuscular specialist at USF and UF Shands. I also know I have been suffering...
    • help1127
    • Thread
    • abdomen als atrophy back bulbar clinical clonus emg fatigue fingers hope idiot medicine muscle muscles night pain pls shortness of breath sleep stiffness swallow symptoms twitches twitching weakness
    • Replies: 11
    • Forum: Could this be ALS?
  8. L

    out of the shadows

    In May 2016, after a series of falls and visits to many doctors, my mother was diagnosed with ALS. I've been lurking here, scared to come out and say anything, touched by so many stories here and by the support you all offer one another. I have benefitted indirectly when I was feeling quite...
    • lilac
    • Thread
    • ache als angry anxiety bipap breathing diagnosed falling family family member fear night pneumonia risk scared shortness of breath sleep speech sporadic support swallowing voice walker wheelchair worry
    • Replies: 19
    • Forum: Current caregivers
  9. O

    What are the symptoms that indicate need for a bipap?

    I'm having a problem with elevated heart rate. It's usually okay in the morning but gets up to 95 to 99 in the evening. My PCP has increased my B/P medication, and this has helped a little. The only times I am short of breath is when I am exerting myself--getting in and out of bed, getting...
    • old dog
    • Thread
    • als bed bipap breathing clinic finger heart information night oximeter problem shortness of breath sleep symptoms testing work
    • Replies: 4
    • Forum: Primary lateral sclerosis
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