speech

  1. C

    Hello – new member, diagnosed 2011

    Hello Everyone, Although I have had ALS over five years, I am a new member to this forum and would like to introduce myself. I was diagnosed back in February 2011. Physically, from the chin up, I am doing well. I can still speak – albeit softly – and eat which I am very grateful for. South of...
    • Christopher Pike
    • Thread
    • als bed cost diagnosed hope information lift new member power power wheelchair roho shower shower chair software speech story supplement toileting van voice wheelchair wheelchair van
    • Replies: 12
    • Forum: People with ALS (PALS)
  2. S

    A few concerning symptoms. Just anxiety?

    I have been reluctant to post anything here (have been reading for a while) because i felt that it would just fuel my anxiety, but now I feel like it may be beneficial. I realize that I may just be suffering from medical anxiety, however, i do have a few symptoms that i know are not just in my...
    • Savage02
    • Thread
    • anxiety back coughing eating eye finger food foot go away knee pain lift medical money muscles neurologist night pain peg reading sensitivity speech symptoms tests voice work worry
    • Replies: 3
    • Forum: Could this be ALS?
  3. gigem

    Wife diagnosed with bulbar ALS - some questions

    Hello all. My 52 year old wife was recently diagnosed with bulbar onset ALS. Initial diagnosis was by a neurologist Dr. Greg McLauchlin at Baylor, who then referred us to Dr. Harati at Baylor who confirmed the diagnosis a few weeks ago. Obviously it's been a very rough few months for us...
    • gigem
    • Thread
    • als breathing bulbar bulbar als bulbar onset clinic clinics diagnosed diagnosis early feeding insurance kids neurologist onset questions slurred speech speech vacation wife
    • Replies: 14
    • Forum: Newly diagnosed
  4. L

    Stuck between a rock and a hard place

    Hi all, Haven't posted in a while, just living life. My husband continues on his slower to average progression. He is extremely thin, but walks, talks and drives (all barely). No major assistance mechaisms have been entertained or put into play or desired at this time. He is a "don't want...
    • Labinma
    • Thread
    • als back bed camp crying depressed diagnosis early father ideas kids life love meds progression robert shower speech worries young
    • Replies: 12
    • Forum: General discussion about ALS/MND
  5. M

    Gleason act

    I know someone who will testify Thursday in front of the House Energy and Commerce Committee about the Steve Gleason Enduring Voices Act. This act would end the sunset clause on the Gleason Act from 2015 and ensure that speech generating devices remain firmly in the category of "frequently...
  6. J

    Bulbar Onset Diagnosis

    My husband finally had his diagnosis of Bulbar Onset confirmed last week and we are naturally devastated. Whilst he wants to know nothing about what might come next and when, I feel i really want to know everything and need to know what to expect. I have read many posts on here and everyone is...
    • jcmatch
    • Thread
    • advice age back breathing breathing issues bulbar bulbar onset choking diagnosis family helpful holiday hope onset planning questions speech swallowing
    • Replies: 8
    • Forum: Newly diagnosed
  7. S

    Very scared about my mum!!! (I fear Bulbar ALS)

    So my mum ( 52 years old) has been having a few weird symptoms that have been building up in the past few months (about 1 year). To start with about 1 year ago she started complaining that she had a lot of mucus on throat, and she had to clear her throat frequently. She complained about that to...
    • scaredaboutmum
    • Thread
    • allergies als bulbar bulbar als cramps eating fear food medicine mucus night nose reflex scared speech student symptoms umn worried
    • Replies: 3
    • Forum: Could this be ALS?
  8. G

    Bulbar Onset

    Howdy everyone, my name is Greg. It seems there is another Greg Mandell here since the username gregmandell was taken :P My father got diagnosed with ALS when he was 65, started in his right foot. I have lurked this forum for a while since he was diagnosed in 2011. I still lurk the DIHALS...
    • gregmandell2
    • Thread
    • als anxiety bulbar bulbar onset diagnosed dihals father foot helpful neurologist onset problems progression questions reading speech swallowing tongue voice wrong
    • Replies: 10
    • Forum: Could this be ALS?
  9. P

    Bulbar ALS questions

    Hi All, Seeking some guidance here, thanks in advance for your replies. I am a 35y old male, Starting in October 2016 I initially had numbness and tingling in my right arm leading to an NCS/EMG, NCS was normal EMG showed chronic partial denervation in a C7 distribution consistent with a...
    • Plucky81
    • Thread
    • age als arm atrophy bulbar bulbar als clinic clinical denervation early emg fasciculations hope mobility mri normal emg questions reflex speech swallowing swallowing issues symptoms tongue tongue atrophy tongue fasciculations young
    • Replies: 3
    • Forum: Could this be ALS?
  10. N

    Struggling

    Sometimes I even hate to do a rant like this because I feel like I'm whining. It's taken me 24 hours to get up the courage to put pen to paper, as it were. Yes, I'm struggling. The why has multiple reasons. These are on no particular order. 1) sleep. Hasn't been going well. Mostly due to the...
    • Narrowminded
    • Thread
    • back disability frustrated hours kids life lift locked in meds money rant sleep speech speech device vent work wrong
    • Replies: 1,547
    • Forum: Current caregivers
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