I was release last Monday from in-home to outpatient physical therapy. I went to the first session and they spent an hour and 15 minutes with me for the initial evaluation and exercise regiment. I was impressed and excited as to what this can do for me.
Fast forward to Thursday, yesterday...
Well, my situation is a tad different than some people in this forum. I am home bound due to total disability from Hereditary Spastic Paraplegia or HSP. It is a serious deteriorating motor neuron disease that has no treatment or cure and only continues to get worse in degeneration of the...
Well, my situation is a tad different than some people in this forum. I am home bound due to total disability from Hereditary Spastic Paraplegia or HSP. It is a serious deteriorating motor neuron disease that has no treatment or cure and only continues to get worse in degeneration of the...
dear all. i met with my mum's neuro today who said she had a 50/50 chance of having PBP -- or some bulbar ALS, because of her clinical presentation. he said her particular speech presentation was most often associated with ALS and he said there is no other possible differential diagnoses apart...
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I am cutting and pasting this from my site.
I promise I'll be better tomorrow.
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Today my friend Sheila brought over a prayer shawl from the prayer ministry at our church. It has been prayed over and it couldn't have come with better timing. I...
Reader beware - this is blunt. My husband was diagnosed with bulbar onset ALS in May 08. He started slurring his speech in Mar 07 and, after ruling out stroke, doctors figured it was the progression of his Multiple Sclerosis (which he was diagnosed with in 2000). Yes, both M.S. and A.L.S...
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Has anyone experienced a sudden loss of use on one side of mouth? My father thinks my mother has had a stroke within the past 30 minutes. There is nothing going on other than one side of her mouth remains closed. It reminds me of bell's palsy.
She is able to answer questions, and says she...
Research Update from The ALS Association’s National Office
December 9, 2008
ALS Association Co-Funds Study Showing Boosting the Body’s Detoxifying System Counteracts Nerve Cell Loss in ALS Mice; New Therapies Suggested
In a study that demonstrates a much-anticipated proof of principle...
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my husband was diagnosed in Sept. 2008 with bulbar onset ALS he is 48 we had a motorcycle wreck in Oct. 2007 he hit his head on pavement went to ER had scans everything was fine. Then in Jan. 2008 he had colitis which is a bacterial infectin took antiobotics felt better. In april 2008 started...