students

  1. P

    MASSACHUSETTS-I need your help!

    I am a student at Worcester State College and am doing an assignment for journalism. I would love to interact with a patient or their spouse/any family member to get some insight on their daily lives, struggles, anything else they'd like to share with me. I chose this topic because my...
  2. S

    MHS v.s. ALS Basketball Game

    Marshfield High School students and staff are teaming up to fight ALS. Starting at 5:00pm on Wednesday April 2nd at the Marshfield Senior High Field House there will be many activities to enjoy with friends and family including: the iron man obstacle course, rock ‘em sock ‘ems, bungee running...
  3. G

    I am inspired

    Hello:-D, I am a new member, I joined 2 weeks ago but started my first posts today. It's been wonderful reading through your posts and gaining a better understanding of what ALS means to people and how it has affected their life or their loved ones' lives. Thank you for sharing your words of...
  4. S

    Strength, Hope & Persistence

    John is an active Principal @ Marshfield High School, Marshfield WI- John has continued in his passion for improving education of all our students despite his continued struggle with the terminal disease, ALS. John was diagnosed 18 months ago. ALS continues to consume his physical being...
  5. S

    Duct tape for ALS

    About 15 years ago, when my PALS friend, John, was still a teacher, he ran a fund raiser where his students bought 3ft. stretches of duct tape to tape him to the wall : The attached picture is John's first tape job... John has been our principal for 6 years...I've obtained the original...
  6. O

    Occupational Therapy student interview

    Hello, We are occupational therapy students doing a project that requires an interview a person or a family member of a person who has been diagnosed with ALS. This interview would include questions about how the progression of ALS has affected your life in everyday activities. Your...
  7. myooshka

    what to do?

    Hi to all, I'm at a loss for what to do and I need some advice. I have been ill for 16 months. Despite having, brisk reflexes, clonus that nerologists have commented on and said was from anxiety I have never been given an emg. I have been given mri, spinal tap,and nerve conduction studies. No...
  8. L

    EMG Question....

    How the hell can i have twitching and severe atrophy and the EMG be 100% clean of fibs, PSW's, and fasics. He said I have ZERO signs on denveration. I overheard the neuro tells his students, if the fasics are charasteristic of MND they will 100% show up on an EMG. I have had 3 clean EMGS over a...
  9. M

    Good and Bad News

    Hello everyone, As some of you read i was diagnosed with BFS two weeks ago at the ALS center located at UAMS in Little Rock AR. I saw Stacy A. Rudnicki, she is a very good neurologist and very professional, i would recommend her to anyone who is having problems who lives in the south. She...
  10. F

    Feeling deaf, dumb, and blind

    I came to this site to try to find answers to questions I never thought in a life time I would have. I had never even heard of this disease until the docs said it to me, and even after just thought it was something like ms cause of the way they told me. After reading through the threads though...
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