survey

  1. Nuts

    CALS sleep (stop laughing!)

    It is wwwaaaayyyy too early for me to be sleep deprived! I wake at least three times a night, which is very hard on me. I've always been an 8 hour a night sleeper. Oh boy am I in trouble! I wake when he has trouble turning over. He can do it, but it's difficult and he gets tangled, so I...
    • Nuts
    • Thread
    • back bed cals cry early equipment healing mattress muscles night pwc sleep sleeping pills surgery survey venting
    • Replies: 29
    • Forum: Current caregivers
  2. E

    Thank you for responding

    I just wanted to take a moment to thank you for responding to the survey. I know there are so many of these surveys out there and have been done in the past but I am just always hoping that there is something new that hasn't been tapped into yet regarding ALS. Thank you so much. Decoding ALS
  3. S

    Student Seeking Research for Capstone Project

    Hello Everyone, my name is Sam. I am an MFA candidate at the Academy of Art University in SF, CA. Currently I am engaged in a 2 year long thesis project on prosthetic design for debilitating disease. I have taken on this project because my father has MS and I think there is a lot of room to...
  4. Karvorka

    Survey..

    Hi Guys My cousin is looking for a few of you to take a quick survey for her high school certificate assignment on care givers of mnd patients.. If you are interested in doing one let me know and I'll forward the document for you to complete.. Thanks Dale..
  5. Y

    Weird inconsistencies: a survey

    Hi all. Have your doctors ever looked at you and scratched their heads in befuddlement at your "classic ALS symptoms"? The reason why is you don't have ALS, but that's a different story. I thought it would be interesting if some people on here posted symptoms that were "almost, but not quite...
    • YummyDrFood
    • Thread
    • als als symptoms ball fasciculations muscle muscle twitches story survey symptoms tongue tongue fasciculations twitches weakness
    • Replies: 6
    • Forum: Could this be ALS?
  6. M

    Architecture for caregivers: how to better design space

    Hello, My name is Max and I'm currently a Master of Art student studying interior design. I'm studying caregiver needs as it relates to space and design and am looking for a few people to interview and tell me how their experience. My overall goal is to better design hospice facilities to meet...
    • Medesign
    • Thread
    • caregiver caregivers design family father hospice student survey
    • Replies: 1
    • Forum: Past caregivers
  7. M

    Caregiver survery in Hospice facilities

    Hello, My name is Max and I recently lost my Father to ALS in June. I'm currently an Master of Art student in Interior Design and have been studying caregiver/ family experience in hospice facilities. My over all goal is develop a design strategy which better fits the needs of family and have...
  8. J

    FDA hearing on ALS

    Fellow ALS Patient, Below is a link to a survey designed to quickly capture ALS patient's feelings on risk regarding their participation in clinical trials before the FDA ALS PUBLIC HEARING on 25 FEB 2013. This survey was initiated by ALSTUN: "ALSTUN has been unable to find any references to an...
  9. sadiemae

    Survey for FDA Meeting Feb 25th

    A quick survey about clinical trials. https://www.surveymonkey.com/s/YPZHK3M
  10. D

    Survey

    Hello PALS: Has anyone else participated in the "Living with ALS" survey that Tom from Toronto is conducting? I would like to participate but want to ensure this is legitimate as we don't need anyone taking advantage of the disadvantaged. Thank you for any feedback or comments Darryl
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