Hello,
Does anyone know a good model of disease progression based on ALSFRS-R score? My father was told his score was 38/48, after 2.5/3 years since symptom onset. Could anyone point me to a good resource where rates of progression are plotted?
Hello to all,
I am concerned about a couple things going on, and hoping you guys would be able to help me, or give me some ideas on my next step.
Everything started about a 1.5-2 years ago. I flew up to Montana for the week to spend time with family. Had a good trip until the end when I got...
Hello everyone. I'm new on here have alot of fears and anxiety about ALS.
I have not been diagnosed. I've had four opinions from 4 different doctors that say I do not have that. I do have an EMG schedule in 3 weeks.
I've been having a lot of pain in my legs feet arms. I would say minimal...
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Hello everyone, I am sorry to bother you. I am from China and my English is not good. I am 15 years old and no one in my family has a nervous system disease. I learned about amyotrophic lateral sclerosis a month ago. Soon I felt that my right arm was weak and my left arm was weak.
I went to...
I haven’t been here in a while. Busy having kids and all that. I had a baby six months ago and have not really been paying attention to myself. I have noticed thought that I am unable to lift things with my right arm when it is extended I’m a certain way. I became curious so I tried lifting...
Hello! Thank you for allowing me to post this on this forum. I really appreciate any insight!
About a year ago, I was diagnosed with a gluten sensitivity, hiatal hernia, and too much stomach acid. I was placed on a medication and a gluten-free diet. After a few weeks, I noticed some twitching...
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Hello, I hope you are well or as well as possible.
Thank you for checking this thread and thank you for making this section of the forum. It must be very difficult for some members. Your patience for those of us with questions is greatly appreciated.
I've refrained from ALS symptom-checking on...
Hi everyone. I am posting here for the second time, my first thread being that I was due for an EMG. The neurologist I went to here in South Africa deemed it unnecessary, although he did zero tests for any muscle weakness and is by no means an expert on ALS. He was extremely dismissive and did...
Hello everyone!
This ended up being a very long post so I I'm going to put a tldr at the end for those of you with limited energy.
This is my first post here and as a c9 carrier I will likely be lurking around for a while as it is the most comfort I have found so far. I want to say thank you...
Hi all,
First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all over...