toileting

  1. JennyC

    Update on mom

    Update on my mom, she continues to decline quickly. She is now exclusively in a wheelchair as she can no longer use the rollator. She has a home health aid that comes in two times a week for two hours in the mornings but home health aids are expensive. My mom doesn't qualify for palliative or...
    • JennyC
    • Thread
    • advice back bed book brain breakdown caregiving choke cold communication communication device decline early family free grief health health aid heart hospice hours immune life night pain shower shower chair speech stress support surgery toileting transfer update wheelchair work
    • Replies: 6
    • Forum: Current caregivers
  2. A

    Caregiver for a carer

    Just wondering about what CALS get their care helpers to do. I am so new to this,but we have just received funding for a carer to help out so I can find time to leave the house. I have been so attached to primary caring for my husband that I know it is going to be a task to actually leave and...
    • Aussiemndcarer
    • Thread
    • breathing cals caregiver early hours onset respiratory respiratory onset sleep toileting
    • Replies: 15
    • Forum: Current caregivers
  3. JennyC

    Resentful (LONG)

    I am getting so angry and resentful. I am mad that I do work while my brother gets to have nice visits with my mom. Mom won't let my brother or uncle help her with dressing, bathing or toileting....okay I get that but she won't let my aunt who lives 2 minutes away help her either, she will only...
    • JennyC
    • Thread
    • angry arm back brother crying falling family ice kids lift mad meds power pressure toileting wanted work
    • Replies: 12
    • Forum: Current caregivers
  4. Margesmn

    Toileting 201

    I'm looking for suggestions on the next 'level' of toileting. Right now I am still able to walk the few steps to the commode in our bathroom. (My PWC doesn't fit in the bathroom.) However it is becoming challenging and I think I need to make a change soon. We have a bedside commode, which I...
  5. sleepy

    sad turn of mind - dont read if fragile

    not my usual hilarious self (no really I am), but have thoughts in my head. maybe others have dealt with? I find myself reading the recent 'in memory' threads, I've started to call it the departure lounge, names I knew, people I didn't get the opportunity to. And some comments from cals in...
  6. N

    Tall toilet for ALS patients

    ALS patients’ one of common problems is toilet seat height for toileting when the symptom is progressing. It will be getting harder and harder to stand up after finishing toileting. I installed a higher toilet. It is called, “Tall toilet”, 20” height from the floor. It has been helping a great...
  7. A

    Wheelchair clothing questions

    My husband is now wheelchair reliant. We have been on the MND/ALS journey since September 2014. We are experiencing greater difficulty transferring or standing up to change clothes or go to the toilet. So, I wondered if anyone out there can refer me to a manufacturer of men's shorts,or trousers...
  8. N

    life without a lift

    Hello to all. Have any of you tackled the long journey of ALS without a lift? We are surely at the point where a lift would normally be considered and/or necessary, but we are reluctant. I am still able to move my pALS around with transfer boards and a scooter. He has no lower body strength...
  9. D

    Right to elect licensed or unlicensed care

    There appears to be considerable confusion among patients, doctors, caregivers, and regulators about the right of ALS patients to elect who will provide their care. The rule is actually very simple: an ALS patient should have the right to elect who will provide their care—licensed or...
    • Dave K
    • Thread
    • accessibility als caregivers caregiving cost denial disability feeding health hospice increase insurance long term care insurance medical medicare nanny nurses stages students toileting tube feeding
    • Replies: 2
    • Forum: General discussion about ALS/MND
  10. D

    Lift slings

    We need information about lift slings. We were told the best would be a full body commode sling. I was just reading on the internet that the best type for ALS patients is the Hygiene/Toileting sling. Thought I would ask advice from people that have used these slings. Thanks
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