travel

  1. GO2020

    Travel - wheelchair rental

    I have three fairly intense trips coming up this year. Toronto with a bunch of friends to celebrate 50th birthdays - museums, shows, ball game, CN tower. A whole 5 day whirlwind. London, England to visit my niece and then perhaps Utah in the fall with my family. Fun times ahead for sure but...
  2. swalker

    Lithium Battery for Magic Mobility X4

    I am not sure where to put this, so will put it here. Mods, please feel free to move this to a more appropriate forum. As some of you probably read in the PALS checkin post, last Sunday we installed a home-built lithium battery pack in my Magic Mobility X4. I will provide some details in this...
  3. V

    First ALS Clinic Visit

    Yesterday we had our first ALS Clinic visit. I think my PALS was overwhelmed by all of the people. He says he is very tired. He was diagnosed 3 1/2 years ago but was pretty much on a plateau until about 2 months ago when he seems to have fallen off a cliff. For the first 3 years his left...
    • vltsra
    • Thread
    • als als clinic arm bipap breathing chair clinic diagnosed ftd progression running speech travel
    • Replies: 8
    • Forum: Current caregivers
  4. S

    We are stuck and need advice

    I have had 2 accidents now and I just dont understand how it's not ALS related. Both now I have been in the bathroom on time but as soon as I see the toilet I cant hold it anymore and it all comes out. Is this normal? Plus my hair is so greasy and my hair on my head and eyelashes are getting...
    • samnikolep
    • Thread
    • advice als ball constipation cramps diagnosis dry mouth gabapentin helpful increase meds muscle questions riluzole shower stress travel work young
    • Replies: 7
    • Forum: People with ALS (PALS)
  5. S

    No diagnosis - Nervous after 6 months

    I’m concerned about my symptoms I’ve been facing them for just under 6 months. Let me start out by saying that my life is very stressful. I manage about 500 people all over the world. The ups and downs of corporate politics are very impactful and my stress level in the last 6 months has been...
    • Sief
    • Thread
    • advice age back brain diagnosis diet early friend immediately info life mri neurologist no diagnosis onset scared stroke swallowing symptoms tests tongue travel urgent weakness worried
    • Replies: 3
    • Forum: Could this be ALS?
  6. K

    I am terrified. Haven't had much internal peace in the last month.

    First, I want to thank everyone that takes time out of their day to help people in this forum. After doing a lot of research and reading on this forum I have decided to post a thread, seeking help. The truth is that in the past few weeks all I can think about is ALS. As time goes on the more...
    • Kiterunner1987
    • Thread
    • abdomen als back bed diagnosed eating family foot go away ignore muscle neurologist night research sensitivity shoulder sleep stress tests travel twitches twitching weakness work worried
    • Replies: 10
    • Forum: Could this be ALS?
  7. P

    Seeking Permobil F3 Wheelchair

    Hello, I am hoping to find a used Permobil F3 or F5 wheelchair for my father soon. His current wheelchair does not have a tilt or rise feature which he will soon need. I live in Oklahoma, but am able to travel for pickup. I saw that soonerwife was selling one a few months ago, but I'm...
  8. J

    Judgement day coming up...

    G'day everyone. So it's coming up to a year now since I've first been on here - you can read my following threads (though I really don't advise this): Another "Bulbar ALS?" Thread Ongoing ALS concerns... I am now a 30-year-old MD currently living in Australia. I know on my last thread I said I...
    • Jaycee
    • Thread
    • abdominal als? arm atrophy back breathing bulbar bulbar als can't swallow choke cold diet emg fasciculations fatigue holiday life mnd mri neurologist speech swallowing symptoms travel wanted
    • Replies: 2
    • Forum: Could this be ALS?
  9. Chincoteaguer

    Back home from hospital

    I apologize for the length of this post but I hope it might help others who have to take their PALS to the ER. We were in the hospital from Thursday morning until noon on Saturday. As I have posted previously the trip to the ER was recommended by our health care nurse based on a false oxygen...
    • Chincoteaguer
    • Thread
    • allergies back bed breathing caregiver feeding feeding tube foot health hip hope insurance nurses oxygen power preparation problems travel trip
    • Replies: 6
    • Forum: General discussion about ALS/MND
  10. J

    Questions

    I know I’m sure I am over reacting. And I don’t want to waste anyone’s time. I won’t continue to post here if everyone agrees this isn’t what I’m dealing with. Every now and then I will randomly feel a dull ache sometimes in my shins and calf muscle and will travel up to my upper legs and...
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