Just wanted to give my own two cents for what it's worth. I know that ALS patients progress at different rates and many travel well after becoming disabled, but in my friend's situation this is not the case. Six months after being diagnoised and he is entirely too fatigued to make any trips (and...
How do We travel by plane with electric chair and bipap machine?
Dare I mention toilets on plane?
I have a 14 hour flight from Israel to LA
I am worried
We had a chair lift (a chair that goes up and down steps) donated for use by my mother diagnosed ALS. My son and husband unassembled and re-installed the chair. After a few weeks, it has begun to stop on its way up the stair. Going down is fine. After hitting the switch a few times, it will...
Let me start with a brief history about myself.
I am a 23 year old Male.
In April 2005, i was diagnosed with Hodgkin's Lymphoma (A cancer of lymph glands). Radiotherapy and Chemotherapy were given (which included a steroid called Dexona). My post treatment scans were clean and i was declared...
age
als
als?
autoimmune
back
brain
diagnosed
do i have als
do i have als?
early
emg
improvement
ivig
muscle
muscle weakness
neurologist
support
test
tests
travel
treatment
weakness
wheelchair
Well mil has passed away thursday November 23 after her tough struggle with ALS. Sil, mil and I have been visiting this site getting information to help us all deal with this horrible disease.
I want to thank all of you for all your help...this forum is a wonderful thing....
Mil was diagnosed...
I am still researching whether or not to go to a ventilator when I need one. However, I just got out of the hospital after a 4 day stay due to a high cpk count of 1450, and my kidneys were shuting down. I had no urine all night before I went into the hospital. So I may not reach the point of...
als
breathing
caregivers
chair
children
clinic
cure
diagnosis
diaphragm
disability
dying
family
hawking
hearing
helpful
hope
life
medical
muscles
music
neurology
night
power
power chair
problems
quality of life
speech
stephen hawking
symptoms
taste
technology
tracheostomy
travel
trip
ventilator
wanted
work
My brother in law of 20 years was diagnosed approximately a year ago with ALS. I have heard that there is a clinic in the Dominican Republic that takes stem cells from your nostrils, allows them to grow in a petri dish and then replaces them into your body. Does anyone out there know anything...
hi guys.
can anyone explain to me what a feeding tube actually is... how they put it in... where it goes... etc? i am picturing my aunt with a long tube sticking out of her mouth that runs down her throat? can she use it from time to time and then take it out when she can / wants to eat on...