treatment

  1. P

    Patience2 from Arkansas

    Good Evening. I never thought I would join this type of forum. I am a caregiver to my husband. Newly diagnosed - July 2013. Prognosis is terrible because of the onset of symptoms that began only in March 2013. Apparently the length between onset of symptoms to diagnosis predicts the end of...
    • Patience2
    • Thread
    • caregiver diagnosed diagnosis eating end of life finger life lyme lyme disease movement new caregiver newly diagnosed onset questions story supplements symptoms treatment treatments wanted
    • Replies: 12
    • Forum: New members
  2. Compass Rose

    Possible ALS treatment breakthrough

    A friend sent me this story about a possible advancement in treating ALS. Basically, a new study found that BMMA, an amino acid found in brains of people with ALS, mimics this other amino acid called L-serine. When BMMA gets into the protein of cells, it messes them up, and tangled proteins...
    • Compass Rose
    • Thread
    • als amino acid friend l-serine neurologist possible als story supplements treatment
    • Replies: 7
    • Forum: Research and trials
  3. NewbieJess

    Process of being diagnosed

    Hello everyone, I'm new here, currently waiting to see a neurologist next week to confirm a diagnosis. I am worried that it could be ALS .... 3 months ago I took a substance called ibogaine which is a shamanic plant medicine that works to reset your cerebellar and nervous system (I did it for...
    • NewbieJess
    • Thread
    • als arm awareness back candida diagnose diagnosed diagnosis fatigue healing hope medicine neurologist new here scared supplements treatment twitches worried
    • Replies: 4
    • Forum: Newly diagnosed
  4. Nighthawk

    NEALS Webinar w/ALSUntangled

    The ALSUntangled presentation was a mockery. X-Files? Mulder? Samantha? Comparing ALS patients' hopes to believing in UFO's? Why there was a picture of a UFO on the slide? PALS and CALS are not into make-believe and science fiction. We realize a treatment might not work, might be limited, or...
  5. C

    question about Rilutek side-effects

    I apologize, I do not actually suffer from ALS but rather a very severe form of obsessive-compulsive disorder. there was some evidence published that Riluzole might be helpful in treatment-resistant cases and so my doctor agreed to a trial. unfortunately it is so hard to find experiences from...
  6. C

    No Diagnosis yet Confused?

    Hi everyone. I am wondering if anyone can shed some info on me.... I am a 35 year old female..I started in November with serious gastritis. after a month of gastgritis I started with pain in legs and arms tenderness to the touch. I started feeling twitching in legs nothing crazy until I had...
    • cynkevtay
    • Thread
    • back confused diagnosis diet eyes female flu info love lyme mri no diagnosis pain symptoms testing treatment twitching weakness work wrists
    • Replies: 9
    • Forum: Could this be ALS?
  7. B

    Quitting Work Without a Diagnosis

    Anyone in the US been in the position where you couldn't work one more day due to weakness and distress but had no diagnosis so you couldn't take FMLA leave in order to extend your health benefits for a few more months? I need health coverage for 3 more months for a treatment my son is having...
    • bluedog
    • Thread
    • diagnosis emg health insurance money no diagnosis treatment vacation work wrong
    • Replies: 22
    • Forum: Could this be ALS?
  8. J

    Doctor thinks I have als?

    Hello and thank you for your time in advance. This all started 2 years ago, pain, weakness and atrophy in upper left arm. Went to va doctor, he ordered cervical MRI and emg. MRI showed a problem at c5 C6 in the spine emg showed nerve damage.This was from a very old injury that never gave me any...
    • Jwh1
    • Thread
    • als als? arm atrophy back brain denervation emg mri neurologist onset pain problem problems speech surgery swallowing treatment twitching weakness worried
    • Replies: 23
    • Forum: Could this be ALS?
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