trilogy

  1. T

    Trilogy 100 Vent Tray and transport

    My father now at 35% vital lung capacity will have a Trilogy 100 Vent tray attached to his wheelchair this week. He has a lot of anxiety about not being able to maneuver his wheelchair within the ramp van with this extended piece of equipment and the attendant control on the back ofo the...
  2. T

    New Trilogy Delivered

    Well, sort of... Help! The RT came to my house this morning with my new Trilogy respirator. This has been in the works for 3 months so I was glad to see him. "Mark, have you ever worked with a Trilogy before?" "No." "But you've been trained on it, right?" "Oh, yeah." "Are you familiar with...
    • tmasters
    • Thread
    • als als? back bipap clinic immediately night pressure problem speaker phone trilogy ventilator worry
    • Replies: 6
    • Forum: People with ALS (PALS)
  3. tomby

    sip and puff ventilators

    Does anybody have a sip and puff ventilator mounted on their wheelchair? If so, what manufacturer? I had found a youtube video of an ALS patient using a Respironics trilogy 100 unit. I forwarded to my neuro, but apparently Respironics had a big FDA recall in 1/12, so that unit is not available...
  4. rcharlton

    Mobility on a vent: will I still be able to play hide'n'seek?

    So a trache and vent are on the horizon for me - and that horizon just got a whole lot closer. My biggest concern is loss of mobility. My hands and arms are useless but my legs are at 85-90% and I'm still very mobile. Playing games with my 4 year old daughter, kicking a soccer ball to her...
  5. R

    My young spouse has ALS, whats next?

    My 30 y/o wife has ALS and we have two kids (6, 4). She was diagnosed two years ago and is currently at home on a Trilogy vent (by way of bipap, nasal inputs). She has opted against feeding tube and trache. At this point, she has her Trilogy at an output of 30 (air flow out), sleeps alot...
  6. I

    ALS, PLS, MG disease ?

    Hi everyone. I took some time off the forum, and Im back.. I;m like a groundhog in the winter... LOL.. Spring is coming! Just an update my Dx is up in the air at this point. I still have weakness in upper body and pulmonary muscles. Im on a new Avap/ vent machine called the trilogy. I use it at...
    • icecreamlady
    • Thread
    • als back breathing clinic diagnosed emg emg? muscle weakness muscles myasthenia gravis neurologist night pls tests trilogy update vent weakness work
    • Replies: 6
    • Forum: People with ALS (PALS)
  7. C

    Did not get good news at Clinic

    I went to my first Clinic at Mayo yesterday (Thurs) down at Jax, FL and it was a great clinic! Everyone was so helpful and caring. But, I did not get good news. I was diagnosed in October. I went back in late November and had a visit and had my PEG put in. Well since that time I have digressed...
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