unknown

  1. P

    New poem

    On The Wings of Sparrows Bound by movement. Bound by speach. Bound by the unknown and fear. I close my eyes and dream. The Ties that binds falls apart. And seek the flight of sparrows. To dance on the freedom of the wind. Not an eagle nor falcon. Sometimes overlooked but always there. Reality...
  2. A

    air flow pouring out the mask

    Hi ! I have been recently diagnosed chronic respiratory failure, outcome of diaphragmatic emi-paresis of unknown origin, presumably a neuromuscular one. So far I wish that the illness concerns this muscle only, but who can say ? Being a newbie in noninvasive ventilation, I find demanding to...
  3. starente15

    How do you get to Acceptance?

    We just heard my father's diagnosis two weeks ago and I'm still struggling. Logically my mind can process what's going on and will happen yet I find myself cycling through all different emotions constantly and cannot fully accept this. I have constant anxiety and fear of the unknown now and...
  4. C

    My Mom's disease, any cure out there?

    Hi Folks, :) I'm new to the ALS foruim. I'm trying to find answers, But no miracle....Of course... It's been 7 months now since my mother had this disease which none of the neurologists in Seattle can figure out what she really has. My Mom turned 81 in August. Her unknown disease began...
    • Cruznsearch
    • Thread
    • als balance brain breathing cure cured diagnosis drugs family friend hearing hip media medical muscle neurology nurses stem cell stem cell treatment stem cells test treatment unknown vision voice
    • Replies: 12
    • Forum: General discussion about ALS/MND
  5. P

    Is juvenile ALS a possibility at all?

    Hey there, First of all, let me say that I am not the usual hypochandriatic patient often seen in these forums. I have a complex medical history, though I am only 28 years old. By the way, I am not an native speaker so excuse my English. My life has always been centering around my (unknown)...
    • pelztier86
    • Thread
    • als back brain chair clinical diagnosed diagnosis eating emg exhaustion fasciculations genetic ice information life medical motor neuron disease mri muscle muscle weakness muscles neurologist paralysis problems reading research sensory symptoms swallowing symptoms treatments unknown wanted weakness
    • Replies: 40
    • Forum: Could this be ALS?
  6. A

    maybe hope

    Maybe hope ! Munich, 21 January 2014. Professor Dieter Edbauer (37) from the Munich office of the DZNE is given the "Consolidator Grant" of two million Euros from the European Research Council (ERC). The award is given to young researchers who are entering unknown territory with their...
    • ardalon
    • Thread
    • als brain dementia financial ftd grant hope movement professor research support symptoms treatment unknown voice young
    • Replies: 1
    • Forum: Research and trials
  7. M

    Is there anyone like me

    I am here for a update and to ask if there is anyone like me. I will try to make it short but I have a long history. I've experienced some symptoms since 2006- lightheadedness, palps, and racing heart. My GP noted brisk reflexes and said everything was stress. My jerks/body twitches started...
    • monster
    • Thread
    • arm back bfs clinic clinical diagnosed emg fasciculations heart hyperreflexia muscles neurologist normal emg pls progression second opinion stress symptoms testing twitches unknown update weakness wrong
    • Replies: 9
    • Forum: Could this be ALS?
  8. AfraidButNotAlone

    Facts or Fictions, or some where in between

    My impression of this site was that it is a place for support and guidance. The guidance being, I would have assumed, limited to "what works/ed for me" and not a defacto statement of what is and what is not. I don't know if any of the folks on here are MDs let alone ALS/MND specialists. I...
  9. L

    Question for PALs in wheelchairs (and caregivers!)

    I would love any stories and advice about this, as it's a big unknown for me. For PALs who are in wheelchairs, how often do you typically need to transfer/reposition yourself during the day? My mom is going to be my dad's primary caregiver- she's in good health but not big and super strong...
  10. Txgirl

    Your mother is always with you...

    I want to share this poem. I printed it and gave it to my son today. He gave me a big hug and said "I love you mom." I hope you all like it as much as I do. “Your mother is always with you. She’s the whisper of the leaves as you walk down the street. She’s the smell of certain foods you...
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