unsure

  1. J

    Symptoms persisting progressing.

    Hello all, Since my last post I was sent to PT. the fasiculations and cramps have been getting worse and my hand dexterity is declining to where I was asked to take a leave of abscence from work. It started with dropping multiple bottles ( bartender) and then dropping glassware and cutting my...
  2. W

    What do you say to someone just diagnosed?

    A cousin was just diagnosed and we will all be together for the holidays. What in the world do you say to someone who was just diagnosed? Obviously, we are praying for you, we love you, and we will be here to support you, but what are the words when someone is facing something terminal? I've...
  3. I

    One year anniversary of neurological symptoms - still no answers

    Hi everyone. Some background info before we start: I am 30 year old male. I have been diagnosed in the past with: Spina Bifida Occulta Scoliosis (30 degree curve in Lumbar and 49 in Cervical region of spine) Sensorimotor OCD related to swallowing and breathing Testicular cancer which was...
  4. D

    als clinics

    I was diagnosed 3 weeks ago with als but neurologist is unsure of type. I have aiready lost use of my left hand and have weakness in right. I have an appt at MUSC in Charleston SC in Nov and wondering if anyone has had any experience at that facility. I am a veteran and could probably go to the...
  5. Lkaibel

    Friend's Husband is "Actively Dying"

    In a very odd coincidence, a casual friend of mine is also a CALS. Her then fiance was diagnosed with ALS is November of 2013 after a 9 month long diagnostic process. Given a lot of his symptoms and that he is a vet and over 50 white male (higher risk groups all around per our Dr anyway) I am...
  6. L

    Possible familial ALS?

    Hello, First I apologize if I'm posting in the wrong section I am new to this site. I am posting in hopes of getting some opinions from those who have ALS or are wondering themselves. My grandmother passed away from the disease In 2001. From what I have read familial is rare but it is...
  7. S

    Advice for brother newly diagnosed with ALS

    Hello all, my brother was diagnosed 2 weeks ago with ALS. He's 40 with a pregnant wife and a toddler. His diagnosis took about 15 months from first symptom - a fall. He now has a finger that doesn't work, an arm muscle that doesn't work, some weakness, twitches, and some spasticity. He also has...
  8. L

    unsure of symptoms

    Hello.. I am a 40 year old female worried that I may have ALS. Around 3 months ago I started having fatigue while running, doing aerobics and notice my stamina isn't the same. I also had twitching in my upper lip that would come and go. About 2 weeks ago I started having twitching all over my...
  9. C

    HELP! is it time to pull the plug?

    hello my grandmother has had ALS diagnosed for 10 years. the last 3-4 years bed ridden no voice maybe 1-2% no movement , constant aspiration from food and water because she didn't want feeding tube and enjoys eating. she is 78 years old she now has severe pneumonia from aspiration and in the...
  10. R

    Doctor states a potential for ALS

    Hi, I find myself here because honestly, I am unsure if the doctor I saw was really offering me any good information. Not to criticize the doctor I saw, just that he was not my PCP who is on vacation. I just visited my doctors practice and saw the on-call physician. Not my normal PCP. I...
Back
Top