unsure

  1. J

    Symptoms persisting progressing.

    Hello all, Since my last post I was sent to PT. the fasiculations and cramps have been getting worse and my hand dexterity is declining to where I was asked to take a leave of abscence from work. It started with dropping multiple bottles ( bartender) and then dropping glassware and cutting my...
    • jram303
    • Thread
    • arm cramps emg family muscle pain shaking symptoms unsure work
    • Replies: 14
    • Forum: Could this be ALS?
  2. W

    What do you say to someone just diagnosed?

    A cousin was just diagnosed and we will all be together for the holidays. What in the world do you say to someone who was just diagnosed? Obviously, we are praying for you, we love you, and we will be here to support you, but what are the words when someone is facing something terminal? I've...
    • Wigirl
    • Thread
    • diagnosed diagnosis go away love support unsure
    • Replies: 6
    • Forum: Newly diagnosed
  3. I

    One year anniversary of neurological symptoms - still no answers

    Hi everyone. Some background info before we start: I am 30 year old male. I have been diagnosed in the past with: Spina Bifida Occulta Scoliosis (30 degree curve in Lumbar and 49 in Cervical region of spine) Sensorimotor OCD related to swallowing and breathing Testicular cancer which was...
    • ibustinside
    • Thread
    • age als ankle babinski's book brain clean emg cramps emg fasciculations genetic hiv info insurance lyme mri muscle neurologist onset paresthesia swallowing symptom symptoms tests twitching unsure wanted worried wrists wrong
    • Replies: 3
    • Forum: Could this be ALS?
  4. D

    als clinics

    I was diagnosed 3 weeks ago with als but neurologist is unsure of type. I have aiready lost use of my left hand and have weakness in right. I have an appt at MUSC in Charleston SC in Nov and wondering if anyone has had any experience at that facility. I am a veteran and could probably go to the...
    • dmwa
    • Thread
    • als als clinics clinic clinics diagnosed neurologist unsure veteran weakness
    • Replies: 19
    • Forum: Newly diagnosed
  5. Lkaibel

    Friend's Husband is "Actively Dying"

    In a very odd coincidence, a casual friend of mine is also a CALS. Her then fiance was diagnosed with ALS is November of 2013 after a 9 month long diagnostic process. Given a lot of his symptoms and that he is a vet and over 50 white male (higher risk groups all around per our Dr anyway) I am...
    • Lkaibel
    • Thread
    • cals caregiving decline diagnosed dying early friend husband love peg power power wheelchair risk symptoms transfer trilogy unsure van wheelchair
    • Replies: 6
    • Forum: Current caregivers
  6. L

    Possible familial ALS?

    Hello, First I apologize if I'm posting in the wrong section I am new to this site. I am posting in hopes of getting some opinions from those who have ALS or are wondering themselves. My grandmother passed away from the disease In 2001. From what I have read familial is rare but it is...
    • Lindanickole
    • Thread
    • als als? arm atrophy back brain burning cold emg familial familial als fingers maybe familial als? mri pain sensitivity symptoms test tests trip tweezers twitch unsure weakness wrong
    • Replies: 8
    • Forum: Could this be ALS?
  7. S

    Advice for brother newly diagnosed with ALS

    Hello all, my brother was diagnosed 2 weeks ago with ALS. He's 40 with a pregnant wife and a toddler. His diagnosis took about 15 months from first symptom - a fall. He now has a finger that doesn't work, an arm muscle that doesn't work, some weakness, twitches, and some spasticity. He also has...
    • SBHarley
    • Thread
    • age als arm cannabis clinic clinical crying diagnosis diet drugs early edaravone exercise food medicine muscle newly diagnosed onset pain power research stress support symptom symptoms twitches unsure weakness
    • Replies: 4
    • Forum: General discussion about ALS/MND
  8. L

    unsure of symptoms

    Hello.. I am a 40 year old female worried that I may have ALS. Around 3 months ago I started having fatigue while running, doing aerobics and notice my stamina isn't the same. I also had twitching in my upper lip that would come and go. About 2 weeks ago I started having twitching all over my...
    • Ldh1315
    • Thread
    • als arm atrophy brain fatigue female finger ice muscles night ring finger running stiffness symptom symptoms twitching unsure worried
    • Replies: 2
    • Forum: Could this be ALS?
  9. C

    HELP! is it time to pull the plug?

    hello my grandmother has had ALS diagnosed for 10 years. the last 3-4 years bed ridden no voice maybe 1-2% no movement , constant aspiration from food and water because she didn't want feeding tube and enjoys eating. she is 78 years old she now has severe pneumonia from aspiration and in the...
    • cristinasalsfight
    • Thread
    • advice als back bed breathing caregiver death diagnosed eating eyes feeding feeding tube finance food heart help! hospice love movement pneumonia power saliva treatment unsure voice
    • Replies: 10
    • Forum: General discussion about ALS/MND
  10. R

    Doctor states a potential for ALS

    Hi, I find myself here because honestly, I am unsure if the doctor I saw was really offering me any good information. Not to criticize the doctor I saw, just that he was not my PCP who is on vacation. I just visited my doctors practice and saw the on-call physician. Not my normal PCP. I...
    • Robious
    • Thread
    • advice age als anxiety arm balance cramps crying depression drugs exercise heart ice increase muscle muscle twitch muscles relative shaking speech swallowing swallowing issues symptoms test twitch twitches twitching unsure weakness worry
    • Replies: 5
    • Forum: Could this be ALS?
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