voice

  1. M

    Last One

    Ok, so... I'm finally going to see a Neuro but in 3 weeks. I posted here in October 2015 and told you my symptoms. You guys was telling me that this is not ALS but I don't know what to think anymore. My symptoms are the same as 4 months ago, I mean they are kinda worse. - Fasciculations...
    • Max1
    • Thread
    • als driving fasciculations feeling weak fingers keyboard night shaking symptoms thumb twitching voice
    • Replies: 1
    • Forum: Could this be ALS?
  2. M

    Voice Banking Question

    Can anyone give me some info about voice banking or assistive communication. I have read some stuff but I am totally confused about what I will need. My voice is okay right now but I guess now is the time to do something. Thanks Wendy
    • Mlock
    • Thread
    • assistive communication communication confused info voice voice banking
    • Replies: 20
    • Forum: People with ALS (PALS)
  3. S

    Amazon Echo

    I just wanted to point out an interesting device that some people may not be aware of yet. Its called the Amazon Echo. It's a wireless speaker and voice command device It does require the internet, and can only connect via wifi. Beause its an Amazon device, it can access your Audible library...
  4. S

    Voice loss first?

    Hi.I am at the moment between neuro appointments having had an inconclusive EMG and what turned out after back MRI's to be a wrong diagnosis of radiculopathy.I'm starting the cycle again of clinical exam and EMG. In the meantime my voice has become hoarse,croaky and quieter.I m clearing my...
    • Sidney
    • Thread
    • back bulbar clinical diagnosis emg mri symptom symptoms voice wrong
    • Replies: 5
    • Forum: Could this be ALS?
  5. Jeanau

    The hospital and my PEG

    I had my PEG inserted on Thursday morning and came home from the hospital the next day. That 30 hour stay taught me some important things and made me really wonder about and rethink my approach to my ALS. First of all, no ALS patient should ever be in a hospital alone. We're simply too...
    • Jeanau
    • Thread
    • als bed breathing christian confused eating feeding tube food hours immediately life modifications pain peg respiratory support surgery voice wanted
    • Replies: 33
    • Forum: People with ALS (PALS)
  6. 1

    Please answer this question for me so I can leave

    I am trying to work through this new found obsession with ALS. I think lack of education is the culprit. I've been doing better, but I recently started coming down with severe congestion, have a nasally voice, and my nose has been running like a faucet. I know congestion/nasally voice are...
  7. ShiftKicker

    Night time swallowing issues

    Does anyone else have night time coughing and swallowing issues? I wake up frequently with either the urge, but inability to swallow- or, alternately, I wake myself up because I'm swallowing convulsively, end up swallowing bubbles of air and then have the desire to cough (which sets off...
  8. E

    Bulbar onset diagnosis, August 2014

    My father in law was diagnosed with bulbar onset ALS in August of 2014. His first symptom was slurred speech, until the past 6 weeks he wasn't too bad. Now, absolutely to voice, completely limp left arm, chokes on anything and everything with a limited ability to cough, can't keep his mouth...
    • Eileen2014
    • Thread
    • ability als arm bulbar bulbar onset cough assist diagnosed diagnosis father feeding feeding tube hours movement onset slurred speech speech symptom voice
    • Replies: 2
    • Forum: General discussion about ALS/MND
  9. T

    New diagnosis and bulbar issues

    I was diagnosed in December with ALS. My doctor describes my form as atypical and slowly progressing. I've had full body fasciculations for over 2 years, but speech problems started slowly last January. Recently, my voice has gotten progressively worse. I also cough a lot, particularly when...
    • Twitcherama
    • Thread
    • als bulbar choking coughing diagnosed diagnosis eating fasciculations issues new diagnosis only symptom problems speech swallowing symptom treatments voice weakness
    • Replies: 19
    • Forum: Newly diagnosed
  10. K

    I had to enter a date

    As much as we knew that the ALS second opinion diagnosis was coming, when the dr said it on Tuesday it took my breath away and I have had a hard time not crying ever since. I finally put a date in my user info here.... It broke my heart to do it. Original diagnosis was November last year -...
    • Kelly5538
    • Thread
    • als arm brain crying diagnosis heart info kids scared second opinion swallow vent voice
    • Replies: 11
    • Forum: Current caregivers
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