voice

  1. S

    Very Concerned about Bulbar

    Thank you to anyone taking the time to read this and giving me your thoughts and insight. Please know that it is truly appreciated. I have read the stickies, but still have some questions. I am a 40 year old male. I began with a twitch in my left bicep in early December 2018, but the...
    • SLU27
    • Thread
    • allergies back bed bulbar bulbar onset clinical concerned early emg family family member friend muscle neurologist onset problems questions reading swallowing symptoms tremor twitch twitches twitching voice weakness
    • Replies: 4
    • Forum: Could this be ALS?
  2. KarenNWendyn

    Alexa for the technologically challenged

    I am not a techy person, but I do enjoy using my iPad. My hand function is declining. My speech is slightly slurred and nasally, but still understandable. A friend of mine gave me an Amazon “Fire HD 8 with Alexa”, 16gb, for Christmas. I’m embarrassed to say it’s still sitting on my shelf...
  3. D

    Does this sound like ALS? Is this a helpful EMG?

    Hi! First of all I'd like to thank you all for accepting me, and also I'd like to acknowledge all of you as true warriors. Helping others while you're getting through all the stuff you have to live, is truly remarkable. May God bless all of you. I hope you could help me out. I'm a 25 y.o. male...
    • DoctorR2D2
    • Thread
    • als als? awareness balance diagnosed early emg emg? fasciculations helpful hope medicine muscle onset pain scared shoulder surgery symptom symptoms tongue twitches undiagnosed voice weakness
    • Replies: 11
    • Forum: Could this be ALS?
  4. P

    Poem: Names

    Names Dennis , Brad, Scott, David, Andre, Ryan, Linda, Russ, Don, Donnie, Tony. Marty, Steve, Pete, Sue To most, these are just a few names. We run across them everyday. Most are husbands, wives,fathers, brothers, sisters, mothers. But to a very few they are more then just a name. They...
  5. KimT

    NEW APP for PALS

    There is a new free APP for iPhones and iPads called "I have voice." The developer lost someone with ALS and decided he wanted to do this. He asked for feedback on the features. It uses eye gaze technology so you need a newer iPhone or iPad. I've not yet downloaded it but will do tonight...
  6. L

    Question about Bulbar

    I really didn't want to post on here because I know those confirmed with this horrific disease have alot more on their plate. But I also recognize it is a great resource with alot of Knowledgeable people. A little about me, 42/m very active and big into fitness and bodybuilding most my life...
    • leadtheway
    • Thread
    • age anxiety back brain bulbar bulbar onset choke diagnosed emg fasciculations ice life medicine mnd mri muscle onset pain sporadic swallowing symptoms test tongue voice weakness work
    • Replies: 24
    • Forum: Could this be ALS?
  7. JimInVA

    Shifting Sands...

    Our journey began at a Joe Bonamassa concert in November of 2012. With no advance warning, Darcey was suddenly having difficulty walking. Later that same night, she'd be unable to rise from a seated position. It was the beginning of a life phase that neither of us anticipated. For all of...
    • JimInVA
    • Thread
    • ability als bed decline depression diagnosis dying eating eyegaze food heart ice keyboard life night quality of life software symptoms taste technology trilogy voice
    • Replies: 115
    • Forum: Current caregivers
  8. B

    Concerned about ALS

    (Sorry i first posted it by error in the general feed) Hello everyone, first of all thank you for everyone contributing to this forum because I find it quite helpful to read about individual experiences. I am writing here as I have been experiencing different health problems for a while...
    • Brice
    • Thread
    • age als arm brain breathing concerned emg fasciculations fatigue fingers foot health helpful mri muscle neurologist pain problems stiffness swallowing symptoms video voice weakness work wrist
    • Replies: 11
    • Forum: Could this be ALS?
  9. R

    Tobii Dynavox I-15+, Eye Gazer / Computer / Speech generator for sale/LOWERED PRICE

    ABOUT: I am selling a speech generating device with eye tracker used by my father. Bought Q4 2016, it was used for 2 months, it is mint condition, good as new with very practical stand and wireless keyboard included. Price negotiable, I can send it worldwide. PRICE: 3.500 $ CONTACT: You...
    • razgorsek
    • Thread
    • aac communication computer access design dynavox eye father for sale keyboard power sale speech support tobii tobii dynavox tobii dynavox i-15 tobii dynavox i-15+ toby tracker voice worldwide
    • Replies: 0
    • Forum: Used ALS equipment for sale
  10. T

    Getting Help, Caregivers

    We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...
    • ThisPresentMoment
    • Thread
    • age back bed bipap caregiver caregivers dad diagnosed equipment feeding feeding tube hearing heart home care hospice hoyer hoyer lift lift night respite swallowing toileting veteran voice volunteers
    • Replies: 10
    • Forum: Current caregivers
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