I am so relieved, you guys have no idea.
We got a call wednesday afternoon that Dad needed to be at the hospital for the feeding tube operation at 8:00 that night. So mom and I frantically start packing up everything he needs. Bipap, medications, walker, wheelchair and all of that.
I had to...
Despite his disability of being wheelchair-bound with ALS, Lee has managed to create music using a unique, painstaking method. Utilizing a computer and music notation software he is able to compose using one finger and a touch pad. Lee is no longer able to sing because of diminished lung...
I have read here many times to stay ahead of your needs. I have read about PWCs a lot because I started with right foot drop and that leg is progressing, moving up above my knee. I use an AFO on that leg but it gets weak fast and it' starting in my low left leg. I have fallen once. I'm very...
I'm, like, a 33 year old female, and I'm not in good health. I have a lot of weakness all over, I have foot drop, I can't walk anymore without a brace and a cane or walker, and I have trouble swallowing and eating. I went to LOTS of neuros, and they were like, OMG, you have ALS, you're gonna...
als
anxiety
bed
bfs
eating
fasciculation
female
food
foot
foot drop
health
night
scared
sleep
stupid
swallowing
symptoms
tongue
trouble swallowing
twitches
twitching
walker
weakness
Hey all
Decided to keep the rant in a rant. I'm tired of my body. Want a new one, NOW.
I'm trying to do a few things to get extra income. One of those things is helping other writers get their books ready.
Finally had someone that wanted a book formatted for e-book. I'm good at it--honest...
I can no longer walk & my husband uses a Hoyer to move me to my wc or livingroom recliner. From the bed he helps me stand with the aid of a walker (with no wheels) for about 20 seconds to get my pants on & off. I am concerned as I won't be able to stand much longer....how to I get in the hoyer...
Hi,
I have only been diagosed for 7 weeks but already having to use a lift all of the time. I can no longer walk & can only stand 20 seconds with the help of my hubby & a walker. My arm strength is fading quickly. I am not having any trouble with my voice...does everyone with ALS lose their...
Hello friends. You've been so helpful that I do have more questions. Thank you, in advance. So I'm now 3 weeks into positive diagnosis for ALS. What I didn't tell you is that I'm 49 and working at a fairly successful job. As my hand and legs have been showing noted weakness (I went from cane...