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  1. I

    I believe I have respiratory onset ALS

    Hi everyone Try to make long story somewhat short. It started after 10 day long flue-like symptoms in aug. Followed by left-sided chest pain and then breathlessness at exertion. Pain subsided and my breathing issues has stablized somewhat. I have to sleep with inclined bed to not wake up of...
    • inshallah
    • Thread
    • abdomen ability als atrophy back bed breathing breathing issues fatigue finger motor neuron disease muscles neurologist onset pain research respiratory respiratory onset sleep story symptoms twitches twitching wanted weakness work
    • Replies: 8
    • Forum: Could this be ALS?
  2. T

    Ground Hog's Day

    Every day seems more like "Ground Hogs Day". My son and I have been caring for our PALS since September 2011. The first few years were not bad. He still could talk, walk, and eat. As the disease progressed, he decided on a feeding peg tube and much later, a ventilator. He is paralyzed...
    • Texans 2014
    • Thread
    • back children eyes family feeding grant heart hours life love night paralyzed peg respite sleep van ventilator work
    • Replies: 8
    • Forum: Current caregivers
  3. David

    Leapcure Muscle Cramp Trial

    Do you have frequent muscle cramps? Have you been diagnosed with a motor neuron disease like Amyotrophic Lateral Sclerosis (ALS), Primary Lateral Sclerosis (PLS), or Progressive Muscular Atrophy (PMA)? If you’ve been diagnosed with motor neuron disease and meet the requirements listed below, you...
    • David
    • Thread
    • advocacy age als atrophy clinical clinical trial communication cramps diagnosed diagnosis drugs health information life muscle pls pma questions support trial volunteers work
    • Replies: 7
    • Forum: Research and trials
  4. J

    MND timescales or other neuro issues?

    Good morning all, It’s a little advise I’m seeking as all the doc’s I’ve seen and test done have drawn a blank, but the fact remains, my condition is getting worst? I'm not sure what I have but I'm thinking its got to be a nero issue as everything else it coming back as clear, but I'm still...
    • JDB1964
    • Thread
    • back breathing breathing issues decline diagnosis diaphragm eating fingers hours ice issues mnd mri muscle muscle pain muscles no diagnosis pain problems running sleep swallow swallowing test voice work
    • Replies: 4
    • Forum: Could this be ALS?
  5. S

    Possible ALS or just health anxiety?

    Hello everyone, I'm Sara and I'm 23 years old. I've been having a huge amount of anxiety lately about possibly having ALS. What I'm trying to figure out if this is simply anxiety, or something much more troubling... The first thing I noticed was a slight shaking in either of my thumbs...
    • Sara94
    • Thread
    • als anxiety balance exercise fear fingers food foot health increase muscle possible als reading ring finger shaking spasms symptoms work worries worry
    • Replies: 2
    • Forum: Could this be ALS?
  6. K

    Possible ALS symptoms?

    Hello everyone, Firstly to all of those living with this terrible disease, god bless you. My uncle was diagnosed with ALS in 2013 and unfortunately passed away last year at age 66. Firstly I am 27. I suffer from GAD (generalized anxiety disorder.) and OCD (obsessive compulsive disorder.) Last...
    • kevin77
    • Thread
    • age als als symptoms anxiety biopsy diagnosed emg foot medical mistake muscle muscle biopsy neurologist possible als problems symptoms symptoms? trip weakness work wrong
    • Replies: 5
    • Forum: Could this be ALS?
  7. C

    Concerned this may be ALS

    Hello, This is my first posting concerning the possibility I may have ALS. I'm 44 years old and until recently I have been relatively healthy. I work from home and my occupation requires me at a computer for long periods of time and my lifestyle has become more sedentary the past couple of...
    • Chris 23
    • Thread
    • als anxiety atrophy back concerned diabetes diagnosed diagnosis diet emg heart ice introduction massage therapy mri muscle muscle twitching neurologist pain shoulder spasms support tests twitches twitching work
    • Replies: 5
    • Forum: Could this be ALS?
  8. Q

    Swallowing Issues (ALS Related?) Please Help.

    Hi, I want to start by saying I am aware that this is a very serious illness and am in no way trying to make a mockery out of it, however, I'm here because I'm trying to educate myself on the disease to better assess whether I have it, what my risks are etc. The last couple of months I've...
    • Questioningguy
    • Thread
    • ability als anxiety back bulbar eating food issues lump muscles natural paralyzed please help problem saliva sleep slurred speech speech swallowing swallowing issues trouble swallowing work
    • Replies: 8
    • Forum: Could this be ALS?
  9. tripete

    Things that you do not hear about ALS

    In June of 2016 I posted a thread about Pain in ALS and how the "experts" tell us that ALS, as defined by the dying/malfunctioning of our motor neurons, is not painful. As time has progressed I have found many other things that "they" tell us are not issues that are. Like Smell, Bathroom...
    • tripete
    • Thread
    • age als bipap breathing coughing cramping cramps diaphragm dying family fasciculations fatigue feeding fingers foot grace headaches muscle muscle pain muscle wasting pain phlegm sleep venting work
    • Replies: 47
    • Forum: General discussion about ALS/MND
  10. J

    Jaxson Follow up ~5 Months

    Hello....I lost access to my old email address here is a link to my old thread: https://www.alsforums.com/forum/do-i-have-als-als/39181-strange-combo-symptoms.html So I just wanted to circle back and wrap this up for those who may have been interested in my thread. I've talked to a few...
    • jaxson2
    • Thread
    • abdomen back bfs clean emg clinical early emg fasciculation fear helpful information mri nose reading second opinion symptoms testing twitch wanted weakness work
    • Replies: 1
    • Forum: Could this be ALS?
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