young

  1. D

    Could it be?

    I am 28 years old. No family history of ALS but there is a lot of random neurological problems in my family from: my grandfather having parkinsons, my mother suffering from chronic muscle cramping and my aunt who has myclonic tourettes. It’s been about 7 months since my first sign of weakness...
  2. R

    It's been two months

    My mother was diagnosed September 2012 and passed December 1 2014 at 11 pm. Although her official time of death is midnight, December 2... Which was my 25th birthday. She was 53 years young. This is the first support forum I had visited. I then found an ALS caregivers page on Facebook which was...
  3. R

    Really scared

    Hello everyone My name is Rodrigo, 22 years old from Brazil. My uncle passed away from ALS. My symptoms started in the end of December, with a discomfort in my right foot and burning sensation. Then the twitches started all over my body, legs, feet, hands, arms, even in my jaw. Sometimes my...
  4. Jason's Dream

    My New Existance

    I'm not sure who will all remember me, as it has been some time since my Sweetheart died in 2011. I am now over 3 years out into my new existence as a widow and mom to two beautiful little loves. I did hire a moving truck and 2 guys and moved us back into Jason and I's house. That was indeed...
  5. T

    Caregiver for a mean person with als

    I am new never did a blog. Ian a caregiver for my spouse with als. He is very mean and can't seem to make up his mind ever. He asks for something then says never mind, only for 10 mins later asks again. And then he treats me like a servant. I cannot go back to work until we hire some help. How...
  6. J

    A little concerned

    I thought i would ask this here seems i am concerned and i have no insurance or income currently. For about 4 months now i have been dealing with body twitching, mainly in the calf muscles. It also occurs in the back, around the shoulder blades, eyes, and even soles of feet and buttocks...
  7. F

    Earliest ALS Defects Said to Start in Disparate Places

    Very interesting: The ALS Forum - Research News Researchers have identified some of the earliest known defects in mouse models of amyotrophic lateral sclerosis, according to two papers in the January 14 Journal of Neuroscience. Signs of something amiss emerge within just a few weeks of birth...
  8. R

    What do I do when BFS and anxiety is ALS?

    Hi All, I'd like to start by saying I have the highest respect for PALS and CALS living with ALS. Before posting I have reviewed alot of the previous posts and sticky's to answer my own questions, however the time has come where I need personal advice as my situation is unique and scary. Any...
  9. M

    Mixed feelings on husband starting Deanna Protocol

    Happy New Year everyone, As some of you know my husband was diagnosed with ALS 3/2014 and given the standard 2-5 years to live. It is still unbelievable now even after 9 months. He is 32 years old. Now, not that this horrible disease has a specific mold, race, type, age or look...I would just...
  10. V

    als bulbar

    Hello everyone write the Netherlands, am a young gentleman of 42 years, some time ago I have noted a difficulty breathing, thought it could be stress, but 3 weeks past to today, seeing noticed spasms in left thumb base reaching up to move the own but that intrigued me was the twitching in the...
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