Adviceseeker1
Member
- Joined
- May 15, 2021
- Messages
- 17
- Reason
- CALS
- Diagnosis
- 02/2021
- Country
- US
Hello, I have a couple of questions regarding traveling. I help my dad who has ALS:
1. Can a hoyer lift bring a patient into car?
2. How to use the bathroom while traveling? The hoyer lift and commode would be at home so I wonder what to do if you go to a friend's house or visit a public area for example. Or I'm worried if my dad will need to use the restroom while we are still in the car.
3. If you need a bipap at all times, is there a portable version of the bipap? If not, is there a safe way to carry a regular bipap with you when traveling? I also have a generator for power but it's bulky to carry around.
Other non-travel questions:
1. If you use Apria for bipap, do you know if they do an emergency replacement if something happens to the bipap?
2. Is CPR done the same way for ALS patients? I ask this because some ALS patient cannot breathe while lying flat on their back.
3. Can a heimlich manuever be done on a sitting patient? My dad mostly sits in bed and it would difficult to get a good angle.
4. Right now my dad is still eating and breathing okay but I'm worried there will come a point where he can't swallow food or medications in the future or that I will have to call 911 if he has trouble breathing. At what point would I know to contact the doctor about the next steps? For example, feeding tube, breathing tube, starting hospice. I have no idea when I need to do these to prevent a sudden medical emergency. And I'm also worried that maybe my dad will refuse feeding and breathing tube and I wouldn't know what to do next.
Thank you.
1. Can a hoyer lift bring a patient into car?
2. How to use the bathroom while traveling? The hoyer lift and commode would be at home so I wonder what to do if you go to a friend's house or visit a public area for example. Or I'm worried if my dad will need to use the restroom while we are still in the car.
3. If you need a bipap at all times, is there a portable version of the bipap? If not, is there a safe way to carry a regular bipap with you when traveling? I also have a generator for power but it's bulky to carry around.
Other non-travel questions:
1. If you use Apria for bipap, do you know if they do an emergency replacement if something happens to the bipap?
2. Is CPR done the same way for ALS patients? I ask this because some ALS patient cannot breathe while lying flat on their back.
3. Can a heimlich manuever be done on a sitting patient? My dad mostly sits in bed and it would difficult to get a good angle.
4. Right now my dad is still eating and breathing okay but I'm worried there will come a point where he can't swallow food or medications in the future or that I will have to call 911 if he has trouble breathing. At what point would I know to contact the doctor about the next steps? For example, feeding tube, breathing tube, starting hospice. I have no idea when I need to do these to prevent a sudden medical emergency. And I'm also worried that maybe my dad will refuse feeding and breathing tube and I wouldn't know what to do next.
Thank you.