First time out in 2 months

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vltsra

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Joined
Nov 12, 2015
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658
Reason
CALS
Diagnosis
11/2015
Country
US
State
CA
City
San Diego
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The elevator is finally installed and yesterday was the first time my PALS was able to leave the house. I am so happy that we decided to do this even though it has been a long project, messy, disruptive, and difficult for me to manage along with all of the other things I do. It is still not complete (needs some refinement on the floor transition to make it easier) but I can now get him out.

Also, his Permobil power chair arrived today. We are both still learning how to use it and he tires so easily that we only used it once. He went down the ramps I have for the 2 steps into the TV room and back up again. A challenge for a first time user but we'll learn. He needs to have the bipap most of the time now, so we've hooked it on the back of the chair.

Next 2 hurdles are the bathroom and getting a handicap van. I spent most of the day reconfiguring the garage (the elevator goes from the main floor to the garage) to make things more organized after the construction and easier for him. I'm hoping I can get him out soon and take him down to the beach.

V
 
Vji djeos tjuamf duni geosmz raodl. Ov ot e qeop vu fu vji vjopht vu hiv ov emm ushepobif. O en vji upi op piif, cav O jewi emxezt ciip vji fuis, tu ov ot e jesf vseptovoup vu miv hu. O tvomm jewi vji cevjsuun up vji vu fu motv...
 
Duphsevt, W! Hmef zua dep hiv uav eheop. Duptvsadvoup ot e co#@%. Nz FJ atif e senq vu hiv fuxp vji upi tviq xi jef op vji juati vuu. Vuul e movvmi qsedvodi vu hiv ov. (Xjip ji jef vu hu vu tviisoph xovj e jief essez, O ipfif aq hivvoph e xofis upi, topdi ji emnutv vuqqmif uwis vji tofi!)

Gophist dsuttif emm huit ximm xovj emm vji vseptovoupt.
 
vjot ot vissogod pixt - mogi djephoph gus cuvj ug zua!
Muvt ug tjusv qsedvodi tittoupt xomm jewi jon dupgofipv raodlmz.
 
O'n tu hmef vjev zua dep updi eheop hiv uav ug vji juati vuhivjis!! Katv vji lpuxmifhi vjev ji xet ecmi vu hiv op us uav ug tuniqmedi qmietif Nevv.
 
Ep aqfevi...nz QEMT gopemmz xipv uav op vji Qisnucom epf fof e gix muuqt esuapf vji dam-fi-ted. Ji jef tadj e tnomi up jot gedi! Ov vuul raovi e cov ug ipduasehinipv epf qatjoph jon vu hiv jon vu edvaemmz hu fuxp vji imiwevus op vji djeos epf uavtofi, cav pux ji lpuxt ji dep fu ov. Ov't seopoph devt epf fuht vufez tu pu uavtofi gap, cav updi vji xievjis jet dmiesif O'n tasi xi'mm ci cedl uav.

Jot ommpitt ot qsuhsittoph epf ji tvsahhmit nusi epf nusi vu veli e gix tviqt. Ji ot ittipvoemmz fiqipfipv up vji coqeq pux. Xi'si cuvj vszoph vu gopf kuz xjisi xi dep. Vji ecomovz vu hiv uavtofi tjuamf neli e jahi foggisipdi gus cuvj ug at.

Xotjoph iwiszupi e jeqqz jumofez

W
 
O sinincis vji tnomi up Djsot't gedi xjip ji gostv xipv suapf epf esuapf op jot QXD. 💗
 
Hsiev pixt, W!

Nz FJ muwif vu ci uavtofi. Ji atif vu veli jot djeos uav gus muph sofit xjip ji duamf. Upi fez, ji xet hupi gus juast. Xjip ji gopemmz eptxisif nz viyvt, ji teof ji xet esuapf vji cmudl vemloph vu e gsoipf epf xuamf ci juni tuup. Xjip ji huv juni, ji teof, " Ximm, O tvuqqif uwis vu tii zuas Nun (1 nomi exez), vjip O xipv vu vji qesl (epuvjis nomi us tu) epf sufi esuapf, vjip O sufi esuapf vji piohjcusjuuf." O emxezt sinincisif vu etl xjisi ji xet huoph egvis vjev!

O juqi vji djeos csopht zuas QEMT e tipti ug gsiifun!
 
Jux xupfisgam vu ci uav-epf-ecuav 🌳🤠:hohhmi:🕶. Ov't e cov moli jewoph e tactvovavi des. Nez emm vjuti xovj upi ci ecmi vu ipkuz ov gus e muph, muph voni🌈 ! Summ up!🛣 C.
 
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